2.24.17 Pseudobulbar Affect (PBA)

If there's a silver lining to ALS, easily this is it. According to the Mayo Clinic,  "This condition is characterized by an involuntary and uncontrollable reaction of laughter or crying that's disproportionate to an event. The crying or laughing may start as a response to a situation, such as a sad movie, but the feelings … Continue reading 2.24.17 Pseudobulbar Affect (PBA)

2.22.17 – Kind Stranger

On Wednesday I attended the State of our city address with Mayor Betsy Price. Easily one of my favorite lunches that the Chamber puts on every year. I am fortunate to live in the greatest city on Earth and immediately following lunch I was reminded why: I was waiting outside of the convention center for … Continue reading 2.22.17 – Kind Stranger

2.20.17 Clinical Research Study

It blows my mind that in 2017 we still know very little about ALS or the brain for that matter. When I was first diagnosed, Dr. Phillip said I had 3 things to immediately consider: Did I want a second opinion? Did I want to go on Riluzole? (see Medications) Did I want to participate … Continue reading 2.20.17 Clinical Research Study

2.19.17 Tribe Date 

As i'm sure you have figured out, i have many circles of friends that serve different functions in my crazy life. Sometimes the circles over lap and all chaos breaks loose. Dawn and Jen are affectionately dubbed as "My Tribe". We have been through hell and back, cancer, loss of parents, marriages, ALS, breakdowns, graduations, … Continue reading 2.19.17 Tribe Date 

2.14.17 Trekking Poles

So, I (with persistent encouragement from others) decided to get a walking assist to keep me on my feet and stable. See more about that here: 30. Let Go and Let God Turns out, cane wasn't the answer and in swoops God and answers my prayers: trekking poles! I met a guy Saturday in ATX who … Continue reading 2.14.17 Trekking Poles

2.10.17 Clinic 

ALS sucks, but clinic days at Texas Neurology are wonderful! This trip brought 3 first timers: my Thindy, my Wendy, and my Jimbobble. MDA clinic takes a multidisciplinary approach to monitoring the progression of my ALS which is not only efficient but really, really fun. My team is amazing and makes this ridiculous disease somewhat … Continue reading 2.10.17 Clinic 

30. Let Go and Let God

I built this one in as a buffer, a challenge if you will. Unlike most, I appreciate the opportunity to step out of my comfort zone and see what happens. By not setting something specific for this one meant I couldn't plan, and that in and of itself is out of my realm of comfort. … Continue reading 30. Let Go and Let God

10. Happiness Project…Change of Plans

Care to read with me? "There is no duty we so much underrate as the duty of being happy. —ROBERT LOUIS STEVENSON" "During my study of happiness, I noticed something that surprised me: I often learn more from one person’s highly idiosyncratic experiences than I do from sources that detail universal principles or cite up-to-date … Continue reading 10. Happiness Project…Change of Plans