Chaos is defined as complete disorder and confusion. If that doesn't perfectly summarize my schedule, I don't know what does. 3 Bowlathons 1 high level golf tournament 1 Steak Cookoff 1 on going raffle New house 2 ALS catastrophes A very pouty cat All within a 30 day window I have to do lists for my … Continue reading 4.26.17 Chaos
Team Sunnystrong is excited to Celebrate ALS Awareness on July 5th as the Rangers take on the Red Sox. Order your tickets here through June 30th, and I'll place an order so we're all in the same section. Hope you can join us!
I'm 2 for 2 on the last two Thursdays resulting in severe bodily harm. Prayers for a bubble around me as I take on Thursday, and hopefully come out scratch free. I've had enough concussions, broken noses, blood, and embarrassment for a while. Need these current wounds to heal before we add new ones to … Continue reading 4.20.17 Thursday
Everyone loves Phil, especially Peyton. I can't remember life before this precious boy and I love being his Aunt Sunny.
Season 9, Episode 17 The third case involves Brad Parker, a former Mercy West resident with ALS. April remembers him as an amazing guy who never gave up. That's why she's shocked to learn that he wants to be taken off his ventilator so that he can donate his organs once his heart stops.April wants … Continue reading 4.17.17 Greys & ALS
Phil collapsed and off to San Antonio we went for Cass' Bachelorette party!
So Thursday went to shit, very very quickly. Friday was scheduled to be a full day of packing and preparing for the big move next weekend. As it goes lately, those plans went out the window in a hurry. Woke up Friday with a gushing bloody nose that turned our bathroom into that of a … Continue reading 4.15.17 Fractured
"'Cause I've seen better days Been the star of many plays I've seen better days And the bottom drops out" - Citizen King Today was setup to be a busy, productive, efficient day and I screwed it all up at 8:15 AM: I had set Phil in my office because I needed both hands for … Continue reading 4.13.17 Taking this Show on the Road
the ALSA serves many important roles in my daily life with ALS, and sweet Katie is my lifesaver.
Five months ago today, this amazing man made me his wife. We've accomplished a lot in that time and God continues to bless us with wonderful opportunities. 11•12•16 Best Day of my Life #HappilyEverErasmus