Anyone can survive the first day back to work after a long weekend, though I did award myself for surviving after being in Mexico. Where we really see the difference is in day 2 of being back to reality. Separating the men from the boys today, may the odds be ever in your favor.
Welp, here we are: the end of ALS Awareness Month. It's been fun, but I'm looking forward to more upbeat topics - muscle deterioration, falls, death, etc. aren't my favorite. My hope is that you've learned something, please tell me you learned SOMETHING, and that you'll join us at a walk, or at the Rangers … Continue reading May 31 – Love Wins
Phil went international! Cancun was wonderful and Phil rose to the challenge of beach life
According to MDA: Fasciculations are a common symptom of ALS. These persistent muscle twitches are generally not painful, but can be annoying or interfere with sleep. They are the result of the ongoing disruption of signals from the nerves to the muscles that occurs in ALS. We've been friends long enough that I can show … Continue reading May 30 – Fasciculations
You know Phil, right? Have you kept up with his journeys? Phil is a conversation starter, people are curious about his purpose, and once someone thought I was blind - hysterical. Anyway, Phil is named after my favorite TV Character: Phil Dunphy from Modern Family. The best thing about Phil is that he is very … Continue reading May 29 – Mobility
Falls suck, period. Self rhinoplasty is no fun for anyone, ever. Trust me: I've had some pretty gnarly falls, resulting in LOTS of tears, a broken nose, a concussion, sore muscles, ginormous ankle (that was everclears fault) and zero remaining dignity. But, I have my teeth! Have to stay positive, right? The problem when I … Continue reading May 28 – Falls
The ALS community is one of hope, support, compassion, and encouragement. The entry fee is astronomical, and any of us would forfeit our membership for a cure, but if we have to be here at least we're here together. I have met some of the most amazing people through this diagnosis that I would never … Continue reading May 27 – Community
There are some amazing people I need you to meet: ALS Films to Watch Watch Learn Share Join Team SunnyStrong: SunnyStrong Store 7/5 ALS Awareness Night at the Rangers 9/16 MDA Muscle Walk at Globe Life Park 11/4 ALSA Walk to Defeat ALS at Trinity Park
On 10.10.15 I went and got something that was just for me, with three of my favorite people on the planet. I got this as a physical reminder of everything I have overcome through my ALS journey. through good days and bad, frustrations and triumphs, laughter and tears I can look down and remember that … Continue reading May 25 – Just For Me
see ya later, alligator!