Reblog: Divorce or Death, a Real Life Decision

THE BLOG  07/26/2016 09:51 pm ET Updated Dec 06, 2017 Divorce or Death, a Real Life Decision By Jay Smith JAY SMITH 890 When I was diagnosed with ALS, I was given two years to live. Two and a half years later here I am typing this article using my eyes, while being fed through a tube … Continue reading Reblog: Divorce or Death, a Real Life Decision

Reblog: ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014

https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2Fsunny.brous%2Fvideos%2F10100219149410176%2F&width=500&show_text=true&height=1019&appId 8/19/14 via ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014

1.30.18 Three is my Favorite Numba

Yesterday was a big day for a couple of reasons: 1. Round 5 of Radicava Ridiculousness is rockin right along - 4 days down, zero excitement to report. 2. It's officially my last week of Short Term Disability and I celebrated by sleeping until 2PM - homegirl was sleepy. 3. Our house is finally getting … Continue reading 1.30.18 Three is my Favorite Numba

1.26.18 ‘Just remember you have every right to be here’

“Maybe that memory - plus the data - would give neurologists more confidence to launch into those tough conversations, and we patients wouldn’t have to wait as long to be diagnosed. Or maybe their empathy would empower us to make decisions earlier, before they have to step in and force one when the situation has … Continue reading 1.26.18 ‘Just remember you have every right to be here’

1.24.18 Squares for Sale!

https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2FSunnyStrongALS%2Fposts%2F941233046051203&width=500 Fun Fact: Every 7 years Sunny's birthday falls on Super Bowl Sunday! This year we're combining two of America's favorite things: Gambling and Charity! The first board sold so quickly, that we opened a second board! Each square is $10, 50% of the total will be donated to SunnyStrong and the other 50% divided evenly … Continue reading 1.24.18 Squares for Sale!

Reblog: Cannabis Looks Promising for Improved Quality of Life

via Cannabis Looks Promising for Improved Quality of Life My two major takeaways from this article:  Their goal was to bring patients together with researchers to ask questions and share information, and increase the dissemination of ALS research information in a patient’s “voice”. 91% of those using cannabis said it improved their quality of life … Continue reading Reblog: Cannabis Looks Promising for Improved Quality of Life

1.20.18 Three Years Ago Today

January 20, 2015 is a day that changed my life in so many ways. Yes, I'd give it back if given the chance because ALS sucks, but hear me when I say that not everything that it has brought into my life has been bad. I'm busy, you know it, I know it, ALS fights … Continue reading 1.20.18 Three Years Ago Today