via 4.19.18 We Have One Month, People
I saw this on FB the other day and laughed, hard. Thanks to Brother Brous for finding the pic for me when I needed it. Allergies and snot seem to be a consistent theme across social media, but have you stopped to think about the struggles this additional sludge presents for ALS patients? Full Disclosure … Continue reading 4.27.18 Allergy Fun
Monday my parents celebrated 13 years of marriage. Today Kenneth's parents celebrate 32 years of marriage. We are lucky to have great examples of what it means to love and be loved, for better or worse, and we are proud to be products of our parents. We had very different upbringings. We work together to … Continue reading 4.26.18 Anniversaries
Round 8 started Monday and so far nothing too exciting to report. With Radicava, no change is the goal because this drug is supposed to slow the progression. No news is good news. I realized recently that we haven't really discussed why I'm taking this medication, it's importance in the fight against in ALS, and … Continue reading 4.25.18 Round 8 Radicava Ridiculousness
“Since NIH is the largest funder of ALS research in the world, any increase to their budget could also mean an increase in funding for ALS research. In fiscal 2017, the NIH spent $55 million on ALS research, up from $52.2 million in fiscal 2016.”
Late last month, Congress passed a $1.3 trillion fiscal year 2018 Consolidated Appropriations spending bill that included a $3 billion increase to funding for medical research to the National Institutes of Health (NIH). Funding to the NIH has increased to $37 billion, the largest bump they have seen in years.
Since NIH is the largest funder of ALS research in the world, any increase to their budget could also mean an increase in funding for ALS research. In fiscal 2017, the NIH spent $55 million on ALS research, up from $52.2 million in fiscal 2016.
“It’s a huge win for The ALS Association and the ALS community to see such a significant NIH budget increase,” said Calaneet Balas, president and CEO of The ALS Association. “We’re confident the increased budget will enable new ALS research, which is critical to ending this devastating disease, and thank our lawmakers for their…
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We've discussed, in depth, my passion for education. My involvement in college access programs like TRiO, Junior Achievement and GForce is part of who I am at my core. Education, in my opinion, is the most important investment a person can make - for themselves, for their families, and for their future. I knew that … Continue reading 4.24.18 Forgiveness
It’s with a heavy heart that we lay our friend to rest, she was truly one of the good ones. Her faith never wavered, even though all of the hardships and pain she endured during her battle with ALS. I’m thankful for her friendship, her constant encouragement and outpouring of love, and for her daughters … Continue reading 4.23.18 Goodbye for Now, Momma Duke
I'm calling today's conference room meeting to remind everyone that May is ALS Awareness Month and we have lots of fun things going! We are exactly one month away from the greatness that is the 14th Annual Hico Steak Cookoff. Join us in Downtown Hico on May 19th for a day of music, food, and … Continue reading 4.19.18 We Have One Month, People
Did y'all see Black Panther? Remember the cousin, Erik Killmonger, played by Michael B. Jordan? He had the raised scars all over? Erik Killmonger : I don't worry about no brand. Check these out. Each one is for a kill. My scars didn't come from kills, obviously, but i'm starting my own pattern of skin … Continue reading 4,18.18 Just Call Me Killmonger
via ALS Advocacy Fly-In a Huge Success, Lead Up to National ALS Advocacy Conference And Carlie and I are going! We are excited to go to DC, to advocate for ALS, and to preach the gospel of SunnyStrong to everyone that will listen! Phil is PUMPED to get another flight under his belt - Carlie, … Continue reading 4.17.18 ALS Advocacy Conference