Past, Present, Future: The Journey to Advance Innovations in ALS

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The renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.

Highlights of the program include:
PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be utilized in clinical trials to tailor patient identification and evaluation

PRESENT: The current state of genetics and biomarker research in ALS, including lessons learned from past clinical trials

FUTURE: A vision for precision medicine in ALS that utilizes advances in diagnostic approaches and biomarkers to classify patient subphenotypes more accurately

At the end of the program, you will have an opportunity to submit your questions during a live Q&A session moderated by Dr Angela Genge.

It was a good start to the week’s sessions. Personally, I prefer the debate format and being in person but happy to be present. We had an impromptu zoom chat with some of the patient fellows and that session was informative and entertaining. I’ll get something together on this year’s fellows, they are awesome.

Late breaking news as posted by I Am ALS, “Your advocacy is making hope real. Together we asked the House to stand with the ALS community and they delivered. House Congressional champions voted to bring dignity to those impacted by ALS today just like their colleagues in the Senate. Just one last step to make S.578 real.”

I’ve gotten to be a patient advocate in DC three different times now. The major ask for our meetings has always included gaining support for the bill that passed through the House today waiving the 5 month waiting period for SSDI benefits. Read more about this enormous victory, here.