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October Adventures for SunnyStrong

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  • 7.10.19 Misunderstood July 10, 2019

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sharing the gospel of @drpepper with every friend i make #drpepper #drpepperfiene #newfriend #bffgoals #seรฑormike #cancun #fwtxbloggers
i donโ€™t think it gets much cooler than being in @people https://people.com/health/woman-did-als-ice-bucket-challenge-diagnosed-als-6-months-later/ #lougehrigsdisease #als #alstexas #alsa #sunnystrong #alssucks #amyotrophiclateralsclerosis #peoplemagazine #pinchme #fwtxbloggers #fwtx #liveworkplayfw
my friend @skalpakoff always teaching and always looking better than necessary ๐Ÿ˜๐Ÿ’ช๐Ÿผ #Repost @skalpakoff with @get_repost ใƒปใƒปใƒป 6/24 7:30am feeding tube placement 6/24 11:30pm emergency surgery to repair stomach damage from feeding tube placement. Left hospital 6/27 7/6 7:30am replacement of existing feeding tube, repair of colon.ย  I am still hospitalized, hope to leave Saturday 7/13. Too many details to list, this is my clifs notes from my recent surgeries/hospital stays. ALS patients get feeding tubes for 2 reasons, (1) to get nutrition because they can't swallow anymore safely, or (2) get it while they can still swallow normal food, but choose to supplement food with formula nutrition to make sure they're getting enough calories. Maintaining weight is very important for ALS patients, I have lost 50+ lbs since diagnosis.ย  I needed to gain my weight back and was unable to do it by just eating more. Although this may be viewed as a setback to my fight with ALS, I chalk this up to a meaningful experience. I have had so many positive experiences with humans in here, you wouldn't believe it. The special bond with Carmena has grown ever stronger and our relationship has reached a dynamic I never would have known existed had these challenges never presented themselves. My family is amazing, love them all and all their support is endless. What I want to tell everyone is that every difficult time in your life presents a unique opportunity to grow. It's all about your perspective. Embrace each day and make the best of it! #teamshaunyboy
remember that time I was rocking the whole only child, 2 year old gig and ๐Ÿ’ฅBAM ๐Ÿ’ฅ here comes not one, but TWO brand new real life baby dolls for me to play with and dress up anytime i want ๐Ÿ˜๐Ÿ˜๐Ÿ˜ iโ€™m pretty sure the pride on my face says it all, and 30 years later Iโ€™m still just as proud to call them mine ๐Ÿ˜Š๐Ÿ˜Š #mybabies #thisis30 #happybirthday #proudbigsister
crazy hair, eyebrows on fleek thanks to my girl @julielala90 and Round 23 of #radicavaridiculousness wrapping up before we FINALLY get to vacation at @excellenceplayamujeres #als #alssucks #sunnystrong #lougehrigsdisease #iamals #beachtrip
happy birthday @caseybrous and @cassrpow and @amandabrous ๐Ÿ’ฅ๐Ÿ’ฅ๐Ÿ’ฅ#thisis30 #adulting

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CAPTIVATING!

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Living with ALS

onein400 - Living with Motor Neurone Disease

My weekly Motor Neurone Disease blog - Fun, facts, science and Life

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