It’s that time again, Super Bowl! This will be our third year, I think, to do them and it’s always fun to have y’all join us. Proceeds from this fundraiser will kick off our efforts to attend the International Symposium on ALS/MND in Basel, Switzerland. Assuming the world gets it’s act together and the Symposium … Continue reading 1.12.21 Super Bowl Squares
Adventures for SunnyStrong
12.4.20 Jokes On Me
I stole this picture from Cathy as it adds to the validity of the story. We were in Perth and the weather was as close to perfect as it gets for me. We were discussing the next symposium set for December 2020 in Montreal. I asked Bronson to look up the current weather in Montreal … Continue reading 12.4.20 Jokes On Me
12.3.20 30th Annual International Symposium on ALS/MND in Perth
So, guess what? I never posted my notes and take aways from the conference last year. With this year's symposium kicking off next week, there's no time like the present. I know we discussed some of the fun highlights of the trip, but I'll follow up this post with anything that might have been left … Continue reading 12.3.20 30th Annual International Symposium on ALS/MND in Perth
12.3.19 Cheaters for Everyone
Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone
Proof of Life – Perthfecta Day 2
12.2.19 It’s Tomorrow Here
My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here
11.29.19 This is for you, pALS
I've removed all the unnecessary hair, and what's remaining has been waxed, cut, and colored accordingly. My suitcase is bulging with who knows what, and I can already think of 5 things I'll have to get there. You'd think I'd be a pro by now, we'll see what happens. We are soon to board the … Continue reading 11.29.19 This is for you, pALS
11.1.19 FORE!
It truly is a good thing that I married a golfer, even if I did have to have him imported. I love that it's something we both enjoy and that's never a shortage on charity tournaments. We learned that this tournament for We Will Cure ALS raised $70k for research. In the ten years since … Continue reading 11.1.19 FORE!
10.31.19 Temporary?
12 days later, I'm starting to think these temporary tattoos aren't so temporary - ooops! This is my souvenir from the FW ALS Walk on Saturday, Oct 19th. Cindy the great out did herself once again with team spirit and getting everyone decked out. Huge "Thank You" to Dan and Susan at PuckettPro for getting … Continue reading 10.31.19 Temporary?
10.30.19 Provision
Y'all, I'm going to be completely honest for a second. No sugar coating, no pretending, no nothing. Are you ready for this truth bomb? I have absolutely no idea what I'm doing. Like none. Zip. Zero. Nada. We're coming up on my 5 year anniversary of being diagnosed with a disease that was supposed to … Continue reading 10.30.19 Provision
