Living with ALS is exhausting. Traveling with ALS is a tiredness beyond comprehension. Being the caregiver for someone with ALS who is exhausted and traveling is equivalent to cafeteria full of kindergarteners crying and helpless. Insert: Dr Bronson Lester In order for me to show up, interact with others, represent Her ALS Story and effectively … Continue reading 10.22.24 Freeloading Friend
Adventures for SunnyStrong
9.24.24 Montreal 2024
2018 - Glasgow 2019 - Perth 2020 - Virtual 2021 - Virtual 2022 - Virtual 2023 - Basel 2024 - Montreal Lucky year #7 is taking us to Canada! Using my voice and experience to keep patients in the conversation at this high level of science has been a top priority of my journey with … Continue reading 9.24.24 Montreal 2024
10.14.22 Y’all Ball
Instead of doing an ALS walk this year we’re hosting the Y’all Ball. I cannot tell you how excited I am to party with everyone in Hico! Games, silent auction, trivia, snacks and pizza - what more could you want? Oh and it’s BYOB. Honestly I didn’t know what “thrift store chic” looked like until … Continue reading 10.14.22 Y’all Ball
6.14.22 Lou Gehrig Day Success
Lou Gehrig Day was entirely too much fun. We had a great turnout and got to meet other pALS in the fight. I'm always proud of this community, the love and support that flows constantly is good for the soul. Mark your calendars for June 2, 2023 for the 3rd Annual Lou Gehrig Day. Lou … Continue reading 6.14.22 Lou Gehrig Day Success
5.3.22 Lou Gehrig Day with the Texas Rangers
Last year was the first annual Lou Gehrig Day celebration. Since the Rangers were on the road and I’m extra, Jennifer and I flew to Denver to celebrate. Thanks to the Hilliard family I got to do a pregame interview with AT&T SportsNet RM and Marc Stout. And thanks to my favorite Morby’s we got … Continue reading 5.3.22 Lou Gehrig Day with the Texas Rangers
4.4.2022 Beers Without Beards
Say that ten times fast, go ahead, I'll wait. I am PUMPED about attending my first in person event with Her ALS Story. Y'all met them when we got the Trailblazer award, remember? Oh, and you can watch our panels and award here. Man, I love in person events, and beer through a straw, and … Continue reading 4.4.2022 Beers Without Beards
10.29.21 ALS Walk in Hico
Tomorrow is our SEVENTH Walk to Defeat ALS! This week we’ve been looking back on our previous walks on social media. Team SunnyStrong 2015 It was cold and rainy in Dallas but we showed up and represented at our first #alstexaswalk 9 months after my diagnosis, our first big event on this journey. Team SunnyStrong … Continue reading 10.29.21 ALS Walk in Hico
8.26.21 My Name is Sunny
You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny
7.27.21 Richter’s Back in Ouray
Y’all remember Jake, right? He’s my wonderful albeit crazy friend that competes in endurance races, in Colorado, that are 100 miles long. Well, he’s at it again at the 2021 Ouray 100 starts 7/30. “The Ouray 100 starts and finishes at Fellin Park, only yards from the hot springs. With over 40k feet of elevation … Continue reading 7.27.21 Richter’s Back in Ouray
1.12.21 Super Bowl Squares
It’s that time again, Super Bowl! This will be our third year, I think, to do them and it’s always fun to have y’all join us. Proceeds from this fundraiser will kick off our efforts to attend the International Symposium on ALS/MND in Basel, Switzerland. Assuming the world gets it’s act together and the Symposium … Continue reading 1.12.21 Super Bowl Squares
SunnyStrong 