“When you pray for others, God listens to you and blesses them, and sometimes, when you are safe and happy, remember that someone has prayed for you.” Tuesday was amazing. Best birthday ever. Friends, family, fried chicken - these are a few of my favorite things. Slept in, had lunch with Ashley and Caden while … Continue reading 2.7.20 Here’s to 33
"To whom much is given, much will be required." Luke 12:48 January 20, 2015 5 years ago today, I was 27 and had a follow up appointment with a new neurologist in Dallas. My plan was to go to the appointment, get referred to another specialist, grab lunch and head into work. I was 18 … Continue reading 1.20.20 Celebrating
Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. If you ordered a shirt they will be at the walk - otherwise I'll mail out orders next week. Here are the details that you need to know for Saturday: … Continue reading 10.14.19 Ready to Walk?
29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp
Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…
We're right at 3 weeks out from the FW Walk to Defeat ALS and there's 3 things you need to do: Register for the Walk by Joining Our Team HERE 2. Order your SunnyStrong Shirts HERE 3. Plan to Join Us for the After Party HERE We've got some exciting things planned for this year's … Continue reading 10.1.19 It’s Walk Month!
This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
I've been going through last years videos and I get more pumped up to be back on Capitol Hill advocating for this community. Jaci and I head out Sunday, and will be meeting with members of legislature all day Tuesday.
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