6.16.20 Awareness Challenge Continued

I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued

5.19.20 Awareness Challenge

ALS Awareness Month has been amazing! 19 days of absolute awesomeness. We've had some pretty great events so far, and in case you've been living under a rock here's what's been going on with SunnyStrong: May 1: ☀️ I’m Sunny 5️⃣ I’ve been a PALS for 5 years 👢 I live in Hico, TX 💃🏻 … Continue reading 5.19.20 Awareness Challenge

2.7.20 Here’s to 33

“When you pray for others, God listens to you and blesses them, and sometimes, when you are safe and happy, remember that someone has prayed for you.” Tuesday was amazing. Best birthday ever. Friends, family, fried chicken - these are a few of my favorite things. Slept in, had lunch with Ashley and Caden while … Continue reading 2.7.20 Here’s to 33

10.14.19 Ready to Walk?

  Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. If you ordered a shirt they will be at the walk - otherwise I'll mail out orders next week. Here are the details that you need to know for Saturday: … Continue reading 10.14.19 Ready to Walk?

10.11.19 #alssymp

29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp

10.10.19 Our Next Adventure Is To…

Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…

9.13.19 Sunny Loves Tom

This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom