Carlie and I can’t wait to check another country off our list! Get ready, we’re bringing Texas to Scotland and ALS Awareness to a whole other level! via Meet the 2018 Patient Fellows
AND CARLIE AND I WILL BE THERE via Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
This dynamic duo is attacking ALS in a whole new way AND in a whole new country: SCOTLAND Carlie and I are so excited we can't hardly stand it. I applied and was accepted as one of three Patient Fellows for the International Symposium on ALS/MND Research in Glasgow this December 7-9. This is the … Continue reading 11.1.18 I Wonder If They’ll Have Dr. Pepper
One year ago today, Paula the Port joined our team and made Radicava Ridiculousness easier for everyone involved. This is our first every picture together. We've had our ups and downs, multiple hospital visits, and troubles but in the end I'm thankful you're part of this crazy journey.
Tuesday was so good I had to raise my personal fundraising goal to $1750 AND WE'RE ALMOST THERE! Please consider making a donation by clicking here. Ok, enough about me. Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. Here … Continue reading 10.24.18 Wed-Nes-YAAAAY
Smooches from my Baloo Bear to celebrate Round 14 of Radicava Ridiculousness being complete! I also wanna brag on this big brown lover boy, the other night as I was finishing up in the shower I told Baloo "Go Get Dad". And you know what? He did! We haven't practiced that before, which makes it … Continue reading Round 14 – Done!