I've been all over the place lately, both physically and mentally. SunnyStrong has exploded recently and we've added a bunch of new followers so I'd like to reintroduce our crazy into the world. Hi, I'm Sunny and I'm certifiably insane. I was diagnosed with Amyotrophic Lateral Sclerosis on January 20, 2015. My definition of normal … Continue reading 3.16.20 Certifiably Insane
Awareness
My Diagnosis Anniversary: Revisiting the Start of My ALS Journey
But guilt is a deft navigator. It finds an alternate route to menace me. It approaches via my love-of-family portal. The spillover effect that terminal illness has on family members is painful, often chronic, and it can be debilitating. Family members who see me regularly have been forced into a caregiving capacity, their lives indefinitely … Continue reading My Diagnosis Anniversary: Revisiting the Start of My ALS Journey
2.7.20 Here’s to 33
“When you pray for others, God listens to you and blesses them, and sometimes, when you are safe and happy, remember that someone has prayed for you.” Tuesday was amazing. Best birthday ever. Friends, family, fried chicken - these are a few of my favorite things. Slept in, had lunch with Ashley and Caden while … Continue reading 2.7.20 Here’s to 33
2.4.20 The Best Day
*I meant for this to post yesterday morning and realized I scheduled it incorrectly. Ooops! As I start the first day of 33, I wanted to share with y’all about the best day of year 32. I realize we haven’t the discussed Australia in detail yet, but I really want you to know about this … Continue reading 2.4.20 The Best Day
2.3.20 Aquarius
I thought this was interesting: Although they can easily adapt to the energy that surrounds them, Aquarius-born have a deep need to be some time alone and away from everything, in order to restore power. People born under the Aquarius sign, look at the world as a place full of possibilities.They are capable of perceiving … Continue reading 2.3.20 Aquarius
1.20.20 Celebrating
"To whom much is given, much will be required." Luke 12:48 January 20, 2015 5 years ago today, I was 27 and had a follow up appointment with a new neurologist in Dallas. My plan was to go to the appointment, get referred to another specialist, grab lunch and head into work. I was 18 … Continue reading 1.20.20 Celebrating
1.18.20 Refuge
ref·uge /ˈrefˌyo͞oj,ˈrefˌyo͞oZH/ noun a condition of being safe or sheltered from pursuit, danger, or trouble. Hico has always been my place of rest, refuge, and relief. From the time we moved here when I was in 3rd grade to now as a semi-adult, Hico has served as my home base asylum from the insanity of … Continue reading 1.18.20 Refuge
1.15.20 Not All Heroes Wear Capes
Steve Gleason. 9 years with ALS, countless lives impacted by his dedication to fighting this disease, legislation changes, technology improvements, awareness, rewriting of the narrative of diagnosis, and the list goes on and on. This disease is devastating, and Steve has been an agent of change in every area impacted by this life interruption. He … Continue reading 1.15.20 Not All Heroes Wear Capes
1.3.20 We’ve Come a Long Ways
Today is our 3 year blog-aversary!! I love seeing who views from around the world. We have some exciting announcements coming up soon! Thanks for continuing to love and support me through this disease.
1.1.20 Decade in Review
2010 Sunnylet’s see... 2010 - I was living in San Marcos with Thomas and Will, and Marg & Cass & I started the Tant Shepherd fan club and followed him around watching baseball, experienced my first and last halloween on 6th Street in Austin, went on Mancation to Ruidoso, and to Florida and knocked out … Continue reading 1.1.20 Decade in Review
