I have been following the progress of this film for a while now and kept up with all the reviews. Honestly I was afraid that it would be a long time before I got to watch it because the live screens were never taking place in Hico, Texas. Jokes on me! Click HERE for the … Continue reading 9.22.21 Watch FREE Tonight
Awareness
8.26.21 My Name is Sunny
You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny
7.27.21 Richter’s Back in Ouray
Y’all remember Jake, right? He’s my wonderful albeit crazy friend that competes in endurance races, in Colorado, that are 100 miles long. Well, he’s at it again at the 2021 Ouray 100 starts 7/30. “The Ouray 100 starts and finishes at Fellin Park, only yards from the hot springs. With over 40k feet of elevation … Continue reading 7.27.21 Richter’s Back in Ouray
5.26.21 We Can’t Wait
Yesterday I had the opportunity to give my patient testimony to the FDA. It was recorded in case you missed it. “In the immediate future, we will be asking the FDA to recommit to its 2019 ALS clinical trial guidance, to explain how it has implemented it, and how it plans to get effective treatments to people with ALS faster.We will be asking for a detailed … Continue reading 5.26.21 We Can’t Wait
4.30.21 It’s Gonna Be May
Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May
3.9.21 Finish Well
Philippians 1:21 “For to me, living means living for Christ, and dying is even better.” Y’all have met my friend Steve Martin here, HERE, and lots of posts on social media. His wife posted yesterday letting us know that he is comfortably transitioning to Heaven. Their faith in God’s divine grace is pouring through each … Continue reading 3.9.21 Finish Well
2.21.21 Surviving the Worst
As the snow continues to melt away from this insane week in Texas, I welcome the time to reflect on the goodness that was exemplified by many in need of basic essentials themselves. For the record, I was among the fortunate few that maintained electricity and water for most of the storm, only losing water … Continue reading 2.21.21 Surviving the Worst
1.29.21 Deported
We recently discussed my newest additions, depression and anxiety, and today I’d like to elaborate on the latter. In the last week or so I’ve had two separate experiences with this bulbous, suffocating monster that I’m hoping will bring some joy to your Friday. Our first adventure takes us to the scary city of Dallas … Continue reading 1.29.21 Deported
1.20.21 Celebrating Life
6 years ago today I posted the following picture on social media. I hadn’t yet announced my diagnosis, hadn’t even grasped the reality of what was happening, just knew it was going to an important reminder for the days to come. Now, we’re 6 years in and life is crazy because of 2020, pandemic, divorce, … Continue reading 1.20.21 Celebrating Life
1.12.21 Super Bowl Squares
It’s that time again, Super Bowl! This will be our third year, I think, to do them and it’s always fun to have y’all join us. Proceeds from this fundraiser will kick off our efforts to attend the International Symposium on ALS/MND in Basel, Switzerland. Assuming the world gets it’s act together and the Symposium … Continue reading 1.12.21 Super Bowl Squares
