Y’all know how much I love my devices, so much so that they each have been assigned affectionate names. Unfortunately we have had to retire some of the crowd favorites as this disease continues to progress. Let’s meet a couple of our old faithfuls, shall we? Phil was a great companion. Named after my favorite … Continue reading 1.10.22 New Faces
Awareness
11.2.21 Team SunnyStrong 2021
Saturday was the best day in the history of ever. Y’all showed up in the greatest way and kept Hico in the spotlight. We started the day with the ALS Texas Opening Ceremony which can be viewed here Then the Mayor of Hico started off the walk with a shotgun start. Last year we glazed … Continue reading 11.2.21 Team SunnyStrong 2021
10.29.21 ALS Walk in Hico
Tomorrow is our SEVENTH Walk to Defeat ALS! This week we’ve been looking back on our previous walks on social media. Team SunnyStrong 2015 It was cold and rainy in Dallas but we showed up and represented at our first #alstexaswalk 9 months after my diagnosis, our first big event on this journey. Team SunnyStrong … Continue reading 10.29.21 ALS Walk in Hico
9.22.21 Watch FREE Tonight
I have been following the progress of this film for a while now and kept up with all the reviews. Honestly I was afraid that it would be a long time before I got to watch it because the live screens were never taking place in Hico, Texas. Jokes on me! Click HERE for the … Continue reading 9.22.21 Watch FREE Tonight
8.26.21 My Name is Sunny
You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny
7.27.21 Richter’s Back in Ouray
Y’all remember Jake, right? He’s my wonderful albeit crazy friend that competes in endurance races, in Colorado, that are 100 miles long. Well, he’s at it again at the 2021 Ouray 100 starts 7/30. “The Ouray 100 starts and finishes at Fellin Park, only yards from the hot springs. With over 40k feet of elevation … Continue reading 7.27.21 Richter’s Back in Ouray
5.26.21 We Can’t Wait
Yesterday I had the opportunity to give my patient testimony to the FDA. It was recorded in case you missed it. “In the immediate future, we will be asking the FDA to recommit to its 2019 ALS clinical trial guidance, to explain how it has implemented it, and how it plans to get effective treatments to people with ALS faster.We will be asking for a detailed … Continue reading 5.26.21 We Can’t Wait
4.30.21 It’s Gonna Be May
Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May
3.9.21 Finish Well
Philippians 1:21 “For to me, living means living for Christ, and dying is even better.” Y’all have met my friend Steve Martin here, HERE, and lots of posts on social media. His wife posted yesterday letting us know that he is comfortably transitioning to Heaven. Their faith in God’s divine grace is pouring through each … Continue reading 3.9.21 Finish Well
2.21.21 Surviving the Worst
As the snow continues to melt away from this insane week in Texas, I welcome the time to reflect on the goodness that was exemplified by many in need of basic essentials themselves. For the record, I was among the fortunate few that maintained electricity and water for most of the storm, only losing water … Continue reading 2.21.21 Surviving the Worst
SunnyStrong 