This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
Awareness
9.11.19 Cowtown Affair
Jennifer Corbett and Family, our 2019 honorees, invite you to join us on September 18th for our second annual Cowtown Affair - a cowboy chic event showcasing Fort Worth's commitment to creating a world without ALS. Last year's event raised more than $28k for ALS Texas. And if you recall, we participated in some unique … Continue reading 9.11.19 Cowtown Affair
8.28.19 Larry’s Challenge
Recently I shared with you about Larry and his current challenge. Jaci and I got to meet Larry in DC this summer and of course fell in love with his campaign. I've been sharing his adventures to keep everyone up to date on his efforts. Kenneth and I have been invited to join Larry for … Continue reading 8.28.19 Larry’s Challenge
ALS Advocates Take Action During Congressional Recess
via ALS Advocates Take Action During Congressional Recess
8.13.19 Hey God, It’s Me Sunny
I love "Ah-ha" moments. Times when the divine intervention of a higher power is so obviously present and in control that it's absurd to believe in anything less. Times that take your breath away and stay with you days after the incident. Moments when, if you were a cartoon, your jaw would hit the floor … Continue reading 8.13.19 Hey God, It’s Me Sunny
8.12.19 Clinic Adventures
To know me is to love me and accept that I'm late, always. It's nothing personal and not intentional, but it happens more times than not. Knowing this first hand, Jaci and Ashley showed up in time to finish the laborious dressing process and braid my hair. 7:30 is my default leaving time for clinic, … Continue reading 8.12.19 Clinic Adventures
8.8.19 What Was I Saying?
I've always been a "blogs have to include pictures" writer, blame it on my instagram addiction. Things have been so slow, and so boring around here that I have no pictures to share. I can assure you that I am full to the brim with Dr. Pepper and Netflix. The heat is tough on me, … Continue reading 8.8.19 What Was I Saying?
7.25.19 Endorsement Needed
I was nominated for the WEGO Health Awards Best Kept Secret Category and that's pretty stink'n cool. I'd never heard of WEGO Health before, but I've jumped in with both feet and so far it's been awesome. Below is info from the FAQs that I found helpful and interesting. What I need from you: Go … Continue reading 7.25.19 Endorsement Needed
7.24.19 Independence
One major struggle with my ALS symptoms is my loss of independence. For the most part my home is set up so that I can get up, down and around by myself. I'm surrounded by amazing, supportive friends and family that step in and help no matter what chaos I drop into their lives. I … Continue reading 7.24.19 Independence
7.23.19 Fall Risk
"There is something wonderfully bold and liberating about saying yes to our entire imperfect and messy life.” – Tara Brach I added to my tattoo collection in early May and man have I gotten amazing feedback from everyone but Lancer. Yes, it's a real tattoo. No, it's not a sticker. Yes, it's permanent. No, it's … Continue reading 7.23.19 Fall Risk
