Reblog: From Balloons to Bubbles

Reblogged from ALS News Today From Balloons to Bubbles: How I Breathe Well with ALS MAY 29, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I know I have no control over how quickly or slowly my ALS progresses, but I can try to hold off the negative effects that … Continue reading Reblog: From Balloons to Bubbles

Reblog: Oral Edavarone

I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone

Reblog: Right to Try Law

Reblogged from ALS News Today US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases JUNE 4, 2018  BY LARRY LUXNER IN NEWS. As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn of Indianapolis tried twice to embrace … Continue reading Reblog: Right to Try Law