Yesterday I had the opportunity to give my patient testimony to the FDA. It was recorded in case you missed it. “In the immediate future, we will be asking the FDA to recommit to its 2019 ALS clinical trial guidance, to explain how it has implemented it, and how it plans to get effective treatments to people with ALS faster.We will be asking for a detailed … Continue reading 5.26.21 We Can’t Wait
Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May
I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued
Last night's book club had every opportunity to flop, but we persevered. Technology issues, poor service, no FB live - everything happened. This group, these conversations are good for my soul. I promise that catching up on our previous meetings will enrich your life. Try it, listen while you're working or driving or showering - … Continue reading 5.22.20 Perseverance
ALS Awareness Month has been amazing! 19 days of absolute awesomeness. We've had some pretty great events so far, and in case you've been living under a rock here's what's been going on with SunnyStrong: May 1: ☀️ I’m Sunny 5️⃣ I’ve been a PALS for 5 years 👢 I live in Hico, TX 💃🏻 … Continue reading 5.19.20 Awareness Challenge
Here's a sneak peek of tonight's author spotlight for our #TalkALSToMe Passion Project for ALS Awareness Month. I'm so excited to see this project take life. The stories and authors are adding strength to the fight against this disease. You're going to enjoy getting to know them and learning from their experiences. You're invited to … Continue reading 5.7.20 Book 1 Virtual Book Club TONIGHT
Mayuri the great has her book on amazon in kindle format for FREE today! Get your copy HERE Learn about Mayuri's greatness HERE Register for our #TalkALSToMe Passion Project virtual book club with Mayuri HERE Tell EVERYONE you know!
It's gonna be Maaaaaaay! Well technically it already is May, but now we're all singing Justin Timberlake. SunnyStrong is in the business of raising awareness for ALS and by golly we're doing just that. I have to tell you how full my heart is from sharing the love and memories that are already pouring from … Continue reading 5.3.20 Awareness Affinity
I love covid memes. Also, we are giving away PRIZES for Registering for #TalkALSToME Passion Project CLICK HERE to Register. Y'all are going to love these authors.
I'm not crying, it's allergies, you're crying, pass me the ice cream. Yes, more ice cream. ALS just really, really sucks. Book 3 for our Talk ALS To Me virtual book club is "Dance Me To The End: Ten Months and Ten Days With ALS" by Alison Acheson. We get a personal look into the … Continue reading 4.22.20 Dance Me To The End