5.3.22 Lou Gehrig Day with the Texas Rangers

Last year was the first annual Lou Gehrig Day celebration. Since the Rangers were on the road and I’m extra, Jennifer and I flew to Denver to celebrate. Thanks to the Hilliard family I got to do a pregame interview with AT&T SportsNet RM and Marc Stout. And thanks to my favorite Morby’s we got … Continue reading 5.3.22 Lou Gehrig Day with the Texas Rangers

4.25.22 Fight ALS Film Festival

Mark your calendars and join us in May for ALS Awareness Month. Register here. Zoom links will be sent out each week. Meetings to discuss each movie are at 7PM CDT on the dates listed below. May 1: So Much So Fast, with a discussion moderated by Carol Hamilton. Carol was inspired by this film … Continue reading 4.25.22 Fight ALS Film Festival

5.26.21 We Can’t Wait

Yesterday I had the opportunity to give my patient testimony to the FDA. It was recorded in case you missed it. “In the immediate future, we will be asking the FDA to recommit to its 2019 ALS clinical trial guidance, to explain how it has implemented it, and how it plans to get effective treatments to people with ALS faster.We will be asking for a detailed … Continue reading 5.26.21 We Can’t Wait

4.30.21 It’s Gonna Be May

Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May

6.16.20 Awareness Challenge Continued

I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued

5.22.20 Perseverance

Last night's book club had every opportunity to flop, but we persevered. Technology issues, poor service, no FB live - everything happened. This group, these conversations are good for my soul. I promise that catching up on our previous meetings will enrich your life. Try it, listen while you're working or driving or showering - … Continue reading 5.22.20 Perseverance

5.19.20 Awareness Challenge

ALS Awareness Month has been amazing! 19 days of absolute awesomeness. We've had some pretty great events so far, and in case you've been living under a rock here's what's been going on with SunnyStrong: May 1: ☀️ I’m Sunny 5️⃣ I’ve been a PALS for 5 years 👢 I live in Hico, TX 💃🏻 … Continue reading 5.19.20 Awareness Challenge

5.7.20 Book 1 Virtual Book Club TONIGHT

Here's a sneak peek of tonight's author spotlight for our #TalkALSToMe Passion Project for ALS Awareness Month. I'm so excited to see this project take life. The stories and authors are adding strength to the fight against this disease. You're going to enjoy getting to know them and learning from their experiences. You're invited to … Continue reading 5.7.20 Book 1 Virtual Book Club TONIGHT