1.8.19 Top 8 of 2018

January 4th was my 2 year anniversary of blogging. I started this blog as an outlet, mostly entertaining and very little education, but it has blossomed into more than I could ever imagine. The opportunities, the doors that have opened, the friends made are just the beginning of my journey. In 2018 we had a … Continue reading 1.8.19 Top 8 of 2018

ALS Organizations Collaborate to Advance New Therapeutic into Trials

Contact: Brian Frederick The ALS Association (202) 464-8612 bfrederick@alsa-national.org FOR IMMEDIATE RELEASE ALS Organizations Collaborate to Advance New Therapeutic into Trials First dose of potential treatment AT-1501 given to humans by Anelixis Therapeutics to determine safety and tolerability Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully … Continue reading ALS Organizations Collaborate to Advance New Therapeutic into Trials

11.26.18 Sustaining the Hope of Survival

this is from my very wisdomous friend, Beth: "With ALS time is my most formidable adversary. Everyday is a battle for productive waking hours. Forcing yourself out of bed in the morning and fending off the urge to return to it by carefully balancing high energy activities like shooting photos with passive ones like long … Continue reading 11.26.18 Sustaining the Hope of Survival

11.14.16 PuraVida Bracelets

Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping  + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets