1.15.20 Not All Heroes Wear Capes

Steve Gleason. 9 years with ALS, countless lives impacted by his dedication to fighting this disease, legislation changes, technology improvements, awareness, rewriting of the narrative of diagnosis, and the list goes on and on. This disease is devastating, and Steve has been an agent of change in every area impacted by this life interruption. He … Continue reading 1.15.20 Not All Heroes Wear Capes

1.1.20 Decade in Review

2010 Sunnylet’s see... 2010 - I was living in San Marcos with Thomas and Will, and Marg & Cass & I started the Tant Shepherd fan club and followed him around watching baseball, experienced my first and last halloween on 6th Street in Austin, went on Mancation to Ruidoso, and to Florida and knocked out … Continue reading 1.1.20 Decade in Review

Remembering Pete Frates, Co-Founder of the ALS Ice Bucket Challenge

The Official Blog of The ALS Association

With heavy hearts, The ALS Association joins the ALS community in celebrating the legacy and mourning the loss of Pete Frates, who died Monday at age 34 after a seven-year battle with ALS.  

Pete lived a Hall of Fame life. 


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12.3.19 Cheaters for Everyone

Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone

12.2.19 It’s Tomorrow Here

My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here