8.26.22 ICER Testimony

Last Friday I got the opportunity to contribute my patient testimony durning the public comments session of the ICER Midwest CEPAC Public Meeting on AMX0035 and Oral Edaravone for Amyotrophic Lateral Sclerosis. This is always something I enjoy doing because I want the people making decisions about ALS to know who those decisions impact. From … Continue reading 8.26.22 ICER Testimony

11.2.21 Team SunnyStrong 2021

Saturday was the best day in the history of ever. Y’all showed up in the greatest way and kept Hico in the spotlight. We started the day with the ALS Texas Opening Ceremony which can be viewed here Then the Mayor of Hico started off the walk with a shotgun start. Last year we glazed … Continue reading 11.2.21 Team SunnyStrong 2021

10.29.21 ALS Walk in Hico

Tomorrow is our SEVENTH Walk to Defeat ALS! This week we’ve been looking back on our previous walks on social media. Team SunnyStrong 2015 It was cold and rainy in Dallas but we showed up and represented at our first #alstexaswalk 9 months after my diagnosis, our first big event on this journey. Team SunnyStrong … Continue reading 10.29.21 ALS Walk in Hico

8.26.21 My Name is Sunny

You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny

6.28.21 And Then This Happened

That's how my friend Sara Cooper started every post, "And then this happened" always progressing her story with excitement and joy. Every time I shared a post she ALWAYS encouraged me by adding the hashtag #letskicksomeals Sara is being memorialized all over social media and her beauty continues to shine on through each post.So, in … Continue reading 6.28.21 And Then This Happened

4.30.21 It’s Gonna Be May

Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May

2.21.21 Surviving the Worst

As the snow continues to melt away from this insane week in Texas, I welcome the time to reflect on the goodness that was exemplified by many in need of basic essentials themselves. For the record, I was among the fortunate few that maintained electricity and water for most of the storm, only losing water … Continue reading 2.21.21 Surviving the Worst