Settle in, friends. Lots to see and learn here. First, SunnyPalooza. Birthday’s are just more fun when they fall on Saturday, amirite? So this year for the big 3-6 we’re throwing a full blown multi event par-tay! ALS One announced that they were bringing back the 50 in 1 Bar Crawl for ALS and Team … Continue reading 1.27.23 Chariot of Choice
#HicoILikeO
10.14.22 Y’all Ball
Instead of doing an ALS walk this year we’re hosting the Y’all Ball. I cannot tell you how excited I am to party with everyone in Hico! Games, silent auction, trivia, snacks and pizza - what more could you want? Oh and it’s BYOB. Honestly I didn’t know what “thrift store chic” looked like until … Continue reading 10.14.22 Y’all Ball
8.26.22 ICER Testimony
Last Friday I got the opportunity to contribute my patient testimony durning the public comments session of the ICER Midwest CEPAC Public Meeting on AMX0035 and Oral Edaravone for Amyotrophic Lateral Sclerosis. This is always something I enjoy doing because I want the people making decisions about ALS to know who those decisions impact. From … Continue reading 8.26.22 ICER Testimony
5.11.22 Serenity Now
Friday was clinic day and it was a marathon. Mah and I left Hico at 7AM and got back at 5PM. Not how I'd prefer to spend a Friday but we're going to discuss how to approach the day from a different perspective. Instead of complaining about a 6AM alarm, I'm choosing to celebrate that … Continue reading 5.11.22 Serenity Now
1.10.22 New Faces
Y’all know how much I love my devices, so much so that they each have been assigned affectionate names. Unfortunately we have had to retire some of the crowd favorites as this disease continues to progress. Let’s meet a couple of our old faithfuls, shall we? Phil was a great companion. Named after my favorite … Continue reading 1.10.22 New Faces
11.2.21 Team SunnyStrong 2021
Saturday was the best day in the history of ever. Y’all showed up in the greatest way and kept Hico in the spotlight. We started the day with the ALS Texas Opening Ceremony which can be viewed here Then the Mayor of Hico started off the walk with a shotgun start. Last year we glazed … Continue reading 11.2.21 Team SunnyStrong 2021
10.29.21 ALS Walk in Hico
Tomorrow is our SEVENTH Walk to Defeat ALS! This week we’ve been looking back on our previous walks on social media. Team SunnyStrong 2015 It was cold and rainy in Dallas but we showed up and represented at our first #alstexaswalk 9 months after my diagnosis, our first big event on this journey. Team SunnyStrong … Continue reading 10.29.21 ALS Walk in Hico
8.26.21 My Name is Sunny
You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny
6.28.21 And Then This Happened
That's how my friend Sara Cooper started every post, "And then this happened" always progressing her story with excitement and joy. Every time I shared a post she ALWAYS encouraged me by adding the hashtag #letskicksomeals Sara is being memorialized all over social media and her beauty continues to shine on through each post.So, in … Continue reading 6.28.21 And Then This Happened
4.30.21 It’s Gonna Be May
Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May
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