8.26.21 My Name is Sunny

You know the kind of gal who was just trying to live her life then gets diagnosed with ALS? Well, that was me. Everything was coming up aces in work, life, and love while something bad was just waiting around the corner. That's when my life changed. C’est la vie! So I made it my … Continue reading 8.26.21 My Name is Sunny

6.28.21 And Then This Happened

That's how my friend Sara Cooper started every post, "And then this happened" always progressing her story with excitement and joy. Every time I shared a post she ALWAYS encouraged me by adding the hashtag #letskicksomeals Sara is being memorialized all over social media and her beauty continues to shine on through each post.So, in … Continue reading 6.28.21 And Then This Happened

4.30.21 It’s Gonna Be May

Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May

2.21.21 Surviving the Worst

As the snow continues to melt away from this insane week in Texas, I welcome the time to reflect on the goodness that was exemplified by many in need of basic essentials themselves. For the record, I was among the fortunate few that maintained electricity and water for most of the storm, only losing water … Continue reading 2.21.21 Surviving the Worst

1.20.21 Celebrating Life

6 years ago today I posted the following picture on social media. I hadn’t yet announced my diagnosis, hadn’t even grasped the reality of what was happening, just knew it was going to an important reminder for the days to come. Now, we’re 6 years in and life is crazy because of 2020, pandemic, divorce, … Continue reading 1.20.21 Celebrating Life

1.12.21 Super Bowl Squares

It’s that time again, Super Bowl! This will be our third year, I think, to do them and it’s always fun to have y’all join us. Proceeds from this fundraiser will kick off our efforts to attend the International Symposium on ALS/MND in Basel, Switzerland. Assuming the world gets it’s act together and the Symposium … Continue reading 1.12.21 Super Bowl Squares

1.4.21 4 Years O’Bloggin’

Yesterday was my 4 year blog’oversary! This little pet project has come a very long ways from it’s humble beginning. Last year, this blog was viewed in more than 90 different countries - I don’t think I can name that many countries. We have also surpassed the 100k views mark which just blows my mind. … Continue reading 1.4.21 4 Years O’Bloggin’

11.12.20 Pity Party for One

"Grief turns out to be a place none of us know until we reach it." - Joan Didion I've been educating myself on grief, recently, and it's exhausting. Turns out that I never grieved my diagnosis, not really. It helped that I fell in love with a redheaded golfer, married him, then got divorced. The … Continue reading 11.12.20 Pity Party for One