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Chronicles of Phil

https://sunnystrongblog.wordpress.com/2017/04/06/4-6-17-phil/

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SunnyStrong

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https://sunnystrong.com/2018/08/21/brous-babies/ #alsawareness #alssucks #sunnystrong #brousbabes #alsicebucketchallenge #cousins #sweetestbabes
#Repost @projectrubie with @get_repost ・・・ Because you just never know what obstacles they may be facing in their personal lives. The biggest change I have noticed in myself since my mother's ALS diagnosis is my ability to pause and consider what someone might be going through when before, I would have been quicker to judge. A few months ago, I was in a restaurant with my husband, children and a few friends. My baby was 3 months old and as I had her on my shoulder to burp her, the middle-aged woman seated behind us proceeded to reach out to have my daughter grasp her finger. Normally, I would have thought-- "whoa lady, it is not ok to touch someone's child without asking." But in this moment I thought instead: "maybe she always wanted children and could never conceive, maybe she lost a child, maybe she misses her own grandchildren..." etc. The thing about experiencing prolonged grief is: I am more open to assuming others too are hurting underneath-- and if a gentle grasp from my baby's hand can bring this woman a moment of joy, surely I can allow that. Be kind. Always. #showyourheart #griefjourney #grief #ALS #ALSstrong #endALS #ownALS #lougehrigsdisease #ALSCanada #alsbc #sundaymorning #quotestagram #quoteoftheday @jasonbeckerofficial
#Repost @als with @get_repost ・・・ “After a few years of seeing doctors and going through many tests, I was diagnosed with ALS in 2010. The disease, for me, is slowly progressing. My wife of 38 years, Mary, is my caregiver. As important as she is as my caregiver, she’s even more so as my partner – spouse first, caregiver second. Marriage first, ALS last. Maddie, my mobility assistance dog, is a constant companion. We’re inseparable. I’ve been painting for many years. Painting since ALS, especially the last two years or so, puts my mind in a place [where] ALS doesn’t exist. I want ALS researchers to know how grateful I am that they get up every day and go to work to find a cure for this seemingly incurable disease. If there’s hope to be had, it lies with them. I'd like to think I didn’t squander the years since diagnosis and I don’t think I did. There isn’t one day that I’m not grateful for the life I have. I do my best to live every day to the fullest, whatever 'fullest' may be on any given day.” — Tom Ward, a United States Marine Corps Veteran living in North Carolina #ALS #MND #ALSAwareness #OurALSCommunity #PortraitsofALS
https://sunnystrong.com/2018/08/20/8-20-18-jake-jake-hes-our-man/ #sunnystrong #alssucks #alsawareness #ouray100
#alsawareness #alssucks #sunnystrong https://sunnystrong.com/2018/08/18/8-18-18-yall-are-killin-it/
#alssucks #alsawareness #sunnystrong #alsicebucketchallenge https://sunnystrong.com/2018/08/17/8-17-18-wellington-lady-rockets/

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I am just a girl who loves reading and talking about books

ALS TEXAS DAD

Living with ALS, the dventures of a Texas Dad and his family as they cope with a terminal condition

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