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Chronicles of Phil

https://sunnystrongblog.wordpress.com/2017/04/06/4-6-17-phil/

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SunnyStrong

SunnyStrong

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#baloobear knows better than to miss laundry day 😂 mom said “if you want it washed, make sure it’s in the basket” #ohsheep #sheepislife #sweetboy #chocolatelab #pictureperfect #laundryfordays #fortworth #fwtx
#Repost @augiesquest with @get_repost ・・・ Is there a link between football and ALS? We do know there is a high incidence of ALS among professional football players. In fact, in 2012 federal researchers in the journal Neurology, established retired pro football players were four times more likely to die from ALS than the general U.S. population. • This month, Augie's Quest is honored to share Tim Shaw’s personal perspective on ALS and football, his experience as a pro NFL Football player who is now battling this disease. #TShawStrong #EndALS • Link in bio!
word 💪🏼
#Repost @augiesquest with @get_repost ・・・ A special message from @teamgleasonofficial! 🙌🏼#nowhiteflags #endals #augiesquestforals
#Repost @strengthoflove61 with @get_repost ・・・ Scopolamine (skoe pol' a meen) Transdermal Patch. We call it the “scope patch” for short. Whatever it’s called, thank goodness for it! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Before ALS we had never heard of scopolamine. Now it’s basically the only medication Brian will take and he RELIES on it. It was on backorder and he’s been without it for 10 days. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ The last four of them have been a hellacious, non-stop cycle of suctioning Brian’s mouth and trach, switching out towels and trying to keep each other smiling. It’s been rough. Without machines it seems as though he could drown in drool. It pains me to watch him suffer. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Crazy that a tiny little patch, less than an inch, will provide him relief for more than 24 hours. The human body. Chemistry. Amazing things, aren’t they?! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Interestingly enough, Brian and I were watching “Robo Cop” a few months ago (have they remade that yet?) and the bad guys were dealing in scopolamine. Weird, right? Did you remember that? I certainly didn’t, just that they were bad drug dealers. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Not long after that we watched an episode of “Vice” that covered the drug and how it gets used for sinister purposes. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ So many things in the world and a lot of them we never know about until a certain event happens. It all just depends. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Deep Thoughts……by Jen Parker 🤩 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m just so grateful there is something that helps Brian and that he hangs in there. He’s already started to dry up. It’s gonna be a better day! 😯🙌✌️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #alsawareness #trachlife
#Repost @augiesquest with @get_repost ・・・ #Repost @syncnetwork with @get_repost ・・・ Hear from ALS Champion Anthony Carbajal, son and wedding photographer, who was diagnosed with ALS in 2014. His mother was also diagnosed 14 years ago. Create your fundraising page today. Link in Bio

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onein400 - Living with Motor Neurone Disease

My weekly Motor Neurone Disease blog - Fun, facts, science and Life

MND Research Blog

Taking you behind the scenes of MND research

Team Hilliard

Help US Strike Out ALS!

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