Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…
#TalkALSToMe
10.07.19 CRLI Graduates
Coming home from Florida is always tough, it's just sooooo pretty. Kenneth and I flew in early so we could attend the scientific symposium during the 2019 NEALS Consortium. "The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis … Continue reading 10.07.19 CRLI Graduates
10.3.19 Rare Across America
We talked about Rare Across America, remember? Well they announced yesterday that 303 meetings took place during the Summer Recess. More info is included below from RDLA about all of the exciting updates that came out of these meetings. I was lucky to participate in 3 of those meetings and on top of making new … Continue reading 10.3.19 Rare Across America
10.1.19 It’s Walk Month!
We're right at 3 weeks out from the FW Walk to Defeat ALS and there's 3 things you need to do: Register for the Walk by Joining Our Team HERE 2. Order your SunnyStrong Shirts HERE 3. Plan to Join Us for the After Party HERE We've got some exciting things planned for this year's … Continue reading 10.1.19 It’s Walk Month!
9.25.19 CRLI Research Ambassadors
Have you ever heard someone talk and and know you had to get closer to them? Aside from Fallon and Seinfeld, I'd never had that overwhelming desire before I heard Dr. Bedlack speak at ALS Advocacy in June. Y'all this mans voice is more smooth than his wardrobe. I leaned over to Jaci and said, … Continue reading 9.25.19 CRLI Research Ambassadors
9.24.19 Can You Dig It?
"Tag Team, back again, Check it to wreck it, let's begin. Party on, party people, let me hear some noise" Team SunnyStrong is back for our 5th Walk to Defeat ALS! Register HereSaturday, October 19, 2019 Trinity Park in Fort Worth 9 AM | 3 mile course "I'm takin' it back to the old school … Continue reading 9.24.19 Can You Dig It?
9.13.19 Sunny Loves Tom
This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
9.11.19 Cowtown Affair
Jennifer Corbett and Family, our 2019 honorees, invite you to join us on September 18th for our second annual Cowtown Affair - a cowboy chic event showcasing Fort Worth's commitment to creating a world without ALS. Last year's event raised more than $28k for ALS Texas. And if you recall, we participated in some unique … Continue reading 9.11.19 Cowtown Affair
8.28.19 Larry’s Challenge
Recently I shared with you about Larry and his current challenge. Jaci and I got to meet Larry in DC this summer and of course fell in love with his campaign. I've been sharing his adventures to keep everyone up to date on his efforts. Kenneth and I have been invited to join Larry for … Continue reading 8.28.19 Larry’s Challenge
ALS Advocates Take Action During Congressional Recess
via ALS Advocates Take Action During Congressional Recess
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