2.15.19 Aunt Joanie

I am related to just about everyone, and I love every single second of it. My great aunt Joanie passed away on Wednesday, February 6th. She was my Grandma Nancy's only sister and they look so, so much alike. These pics are from a few years ago at Aunt Joanie's birthday party, 84th I believe. … Continue reading 2.15.19 Aunt Joanie

2.13.19 I Don’t Know About You, But I’m Feeling 32

Monday, February 4th was my 32nd birthday. Like any mature, fun-loving adult we had a theme: Rhinestone Cowboy. It was awesome. Of course we had Mexican food and margaritas - Los Vaqueros is wonderful. The party started Saturday with all of us going to our annual family trip to the rodeo for corn dogs. I … Continue reading 2.13.19 I Don’t Know About You, But I’m Feeling 32

2.12.19 Candy Hearts

Did you know that they're not making candy hearts this year? Like at all, none. Last year at February clinic, Jess and I handed out these sweets to everyone as a post Valentine's Day treat. This year we had to get a little more creative: Everyone needs a good straw, right? Everyone needs a silly … Continue reading 2.12.19 Candy Hearts

Voice Your Love, in Honor of People With ALS – ALS Texas

Over time an ALS diagnosis can mean the loss of your ability to work, your ability to walk, and, sadly, your ability to speak. This can leave many people with ALS unable to tell their loved ones, in their own voice, just how loved they are. Families living with ALS say this is one of the … Continue reading Voice Your Love, in Honor of People With ALS – ALS Texas

1.24.19 Good Luck!

We're just going to do the one board this year. Good Luck everybody! Game Rules: Sales will continue until all squares are sold or kickoff on Sunday, February 3th - whichever comes first. All sales will take place online through the SunnyStrong Store and winnings will be paid via paypal on Monday, February 4th. If … Continue reading 1.24.19 Good Luck!

1.19.19 Join Us?

Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?

1.18.19 Four Years of ALS

Sunday marks four years since I was diagnosed with Amyotrophic Lateral Sclerosis. This picture was taken the next day when I returned to work, and life. We've done a lot in 4 years, met lots of people, built a powerful force called SunnyStrong, and celebrated many victories while mourning many losses. ALS sucks, and we … Continue reading 1.18.19 Four Years of ALS

1.17.19 Post-Symposium Fun

After the Symposium we were determined to adventure out and see everything we could of this city we had been in for almost a week. Monday morning we got up at found our way to the Kelvingrove Art Gallery and Museum. All of the public sites in Glasgow were free to attend, so we loaded … Continue reading 1.17.19 Post-Symposium Fun