Living with ALS is exhausting. Traveling with ALS is a tiredness beyond comprehension. Being the caregiver for someone with ALS who is exhausted and traveling is equivalent to cafeteria full of kindergarteners crying and helpless. Insert: Dr Bronson Lester In order for me to show up, interact with others, represent Her ALS Story and effectively … Continue reading 10.22.24 Freeloading Friend
Author: sunnystrongblog
9.24.24 Montreal 2024
2018 - Glasgow 2019 - Perth 2020 - Virtual 2021 - Virtual 2022 - Virtual 2023 - Basel 2024 - Montreal Lucky year #7 is taking us to Canada! Using my voice and experience to keep patients in the conversation at this high level of science has been a top priority of my journey with … Continue reading 9.24.24 Montreal 2024
1.14.24 Super Bowl Squares
It’s almost my birthday which also means it’s time for Super Bowl squares! There has been confusion in the past about how to participate so I wanted to share a handy dandy how to guide: Start at Sunnystrong.com Select SunnyStrong Store from the drop down menu Select Super Bowl Squares Board, a new board will … Continue reading 1.14.24 Super Bowl Squares
12.15.23 Bernina Express
✨ BERNINA EXPRESS ✨ Bronson and I took 2 days away to explore Switzerland and what better way to do that than by train with panoramic windows? We started in Chur and traveled down to Tirano, Italy. Over the 76 miles (each way) we got to see glaciers and Alpine mountain peaks and travel through … Continue reading 12.15.23 Bernina Express
12.12.23 Sucker Punching Nightstand
Ok, let’s get the obvious part out of the way. On 12.7 we got up EARLY to attend the pre symposium breakfast session and while Bronson Lester was getting ready, I was stretching on the bed and ended up finding the nightstand with my face on the way to the ground 🤦🏻♀️ Not the souvenir … Continue reading 12.12.23 Sucker Punching Nightstand
12.11.23 Home Again
We made it back safely from Switzerland. When I say “Thank You”, I mean it in a way that words fail to convey the enormity of the emotions behind the sentiment. This trip was life changing, hopefully not face changing, and I’m looking forward to sharing all of it with you. They say it takes … Continue reading 12.11.23 Home Again
9.20.23 Fun in the Sun(ny) Day
If you want it done correctly and efficiently, use the best in the biz: PUCKETTPRO Shirt design for our 10/14 event is pretty fantastic and even includes my face - lucky you! Can’t make it to Hico but still want a shirt? Goto the SunnyStrong Store On race distance select “Just here for the shirt” … Continue reading 9.20.23 Fun in the Sun(ny) Day
9.16.23 FaceTime
I haven’t been the best at blogging lately. Hopefully I’ll rectify that soon, but I wanted to let y’all know about two upcoming opportunities for some good facetime together. Fish Fry & Beer Saturday, September 23rd 12-4 PM McFly’s Pub - 6104 LTJG Barnett RD, Fort Worth, TX 76114 RSVP Here Fun In The Sun(ny) … Continue reading 9.16.23 FaceTime
4.26.23 2nd Annual Fight ALS Film Fest
It’s been an exciting week leading up to the kickoff of ALS Awareness Month! Yesterday the FDA approved a new medication for ALS called Qalsody. It’s the fourth ever approved drug and the first for gene specific mutations of ALS. May is ALS Awareness Month in the US and, in partnership with Her ALS Story, … Continue reading 4.26.23 2nd Annual Fight ALS Film Fest
4.10.23 Remembering Bailey
It’s been one week since my friend passed away. After some reflection time yesterday, I have found some peace around the loss. I still have moments of anger and deep sadness but I’m coming to terms with the fact that I was lucky to love her while she was here. I remember the first time … Continue reading 4.10.23 Remembering Bailey
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