“ALS is not an incurable disease. It is an underfunded one.” – ALS TDI
Now I realize not everyone has impactful amounts of money just lying around (call me if this is you), so for us regular (poor) folks this is how you can help:
Melanie Tannenbaum wrote in Scientific American, “Based on everything that we know about our brains and their bafflingly strong desires to fit in with the crowd, the best way to convince people that they should care about an issue and get involved in its advocacy isn’t to tell people what they should do—it’s to tell them what other people actually do,” Tannenbaum writes. “And you know what will accomplish that? That’s right. Everyone on Facebook making their opinions on the issue immediately, graphically, demonstrably obvious.”
So I need your help telling others about ALS. It doesn’t have to be my story, though I give you full permission to share mine with anyone that will listen, but I’m asking, begging even, for you to talk about ALS. Learn about the disease, ask me about my journey, share your experience with ALS – anything to keep ALS in our peripheral so that a cure is found immediately.