May 17 – MDA

Did you know that 12,000 individuals with ALS have access to MDA ALS Care Centers? And that I’m one of them? See more about clinic here, here, and here.

Since MDA was founded in 1950, life expectancy and quality of life has vastly improved for individuals with neuromuscular diseases. Children and adults are living longer and growing stronger as a result. This is due in large part to the best-in-class, comprehensive care provided to families from a wide variety of health care specialists at one location — the MDA Care Center — on the same day. MDA Care Center teams consist of health care professionals dedicated to guiding individuals and families through the diagnostic process and — once a diagnosis of a neuromuscular disease is confirmed — helping you take charge of your health care by understanding options for medical treatment and daily management.

I’ve told you about ALL the different therapists/doctors I see at clinic, can you imagine scheduling all of those appointments individually and getting info to each person? No, thank you! Wanna know the best part of clinic? Donuts! They feed us breakfast and lunch (BBQ) at each clinic, as far as appointments go, this one is pretty great.

Now I know what you’re thinking, MDA stands for Muscular Dystrophy Association, how does that relate to ALS?

MDA is leading the fight to free individuals — and the families who love them — from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life. We use our collective strength to help kids and adults live longer and grow stronger by finding research breakthroughs across diseases; caring for individuals from day one; and empowering families with services and support in hometowns across America.

This is HUGE y’all! Get out, get involved, and let’s cause a ruckus to end ALS. Someone has to do it, why not us?

Join Team SunnyStrong:

SunnyStrong Store

7/5 ALS Awareness Night at the Rangers

9/16 MDA Muscle Walk at Globe Life Park 

11/4 ALSA Walk to Defeat ALS at Trinity Park 

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