May 30 – Fasciculations

According to MDA:

Fasciculations are a common symptom of ALS. These persistent muscle twitches are generally not painful, but can be annoying or interfere with sleep. They are the result of the ongoing disruption of signals from the nerves to the muscles that occurs in ALS.

We’ve been friends long enough that I can show you the gross stuff, right? Good! So this entire month, knowing that this post was coming, I have been trying to capture my twitches on camera so that I can show you, but when you move they go away, so trying to grab the camera ruins it. They happen all day, but as soon as I started filming my arm to hopefully catch the twitch in action, my leg would start twitching and I couldn’t get any of it. Sorry, Charlie! What I can show you is the fasciculations in my tongue, which is constant and easy to capture. Don’t watch this video if you are grossed out by peppermint coated tongues – deal?


Slooooooooow moooootion

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Join Team SunnyStrong:

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7/5 ALS Awareness Night at the Rangers

9/16 MDA Muscle Walk at Globe Life Park 

11/4 ALSA Walk to Defeat ALS at Trinity Park 

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