By now y’all should know about my girl gang, Her ALS Story. We spent some time together in Madison, WI and it was everything we dreamed it would be. 15 women diagnosed with ALS before the age of 35 came together from around the country for a few days of love, laughter, support, and all … Continue reading 9.29.22 Girl Gang
Life as we know it
8.26.22 ICER Testimony
Last Friday I got the opportunity to contribute my patient testimony durning the public comments session of the ICER Midwest CEPAC Public Meeting on AMX0035 and Oral Edaravone for Amyotrophic Lateral Sclerosis. This is always something I enjoy doing because I want the people making decisions about ALS to know who those decisions impact. From … Continue reading 8.26.22 ICER Testimony
8.22.22 August Clinic Update
Do you ever tell people something in your head but forget to hit send? I've always been at a hefty level of insanity, but I swear it’s been worse since I had covid in January. I have MANY blog posts to purge from my head and I plan to get those out to you over … Continue reading 8.22.22 August Clinic Update
6.20.22 Kendra Scott Giveback Party
I’d like to personally invite you to contribute to the Her ALS Story Wellness Retreat by shopping our Kendra Scott Giveback event. During our party, 7/20 - 7/22, 20% of sales online and in store using the code: GIVEBACK-CGOSH will go to offset various costs of the retreat. This coming fall, we are organizing a … Continue reading 6.20.22 Kendra Scott Giveback Party
6.14.22 Lou Gehrig Day Success
Lou Gehrig Day was entirely too much fun. We had a great turnout and got to meet other pALS in the fight. I'm always proud of this community, the love and support that flows constantly is good for the soul. Mark your calendars for June 2, 2023 for the 3rd Annual Lou Gehrig Day. Lou … Continue reading 6.14.22 Lou Gehrig Day Success
5.11.22 Serenity Now
Friday was clinic day and it was a marathon. Mah and I left Hico at 7AM and got back at 5PM. Not how I'd prefer to spend a Friday but we're going to discuss how to approach the day from a different perspective. Instead of complaining about a 6AM alarm, I'm choosing to celebrate that … Continue reading 5.11.22 Serenity Now
5.3.22 Lou Gehrig Day with the Texas Rangers
Last year was the first annual Lou Gehrig Day celebration. Since the Rangers were on the road and I’m extra, Jennifer and I flew to Denver to celebrate. Thanks to the Hilliard family I got to do a pregame interview with AT&T SportsNet RM and Marc Stout. And thanks to my favorite Morby’s we got … Continue reading 5.3.22 Lou Gehrig Day with the Texas Rangers
4.4.2022 Beers Without Beards
Say that ten times fast, go ahead, I'll wait. I am PUMPED about attending my first in person event with Her ALS Story. Y'all met them when we got the Trailblazer award, remember? Oh, and you can watch our panels and award here. Man, I love in person events, and beer through a straw, and … Continue reading 4.4.2022 Beers Without Beards
2.12.22 Birthday
Birthday’s are the best. I’ve always enjoyed planning and gathering family and friends to celebrate each year. This year my big plan was to congregate the masses for my diagnosis day on 1.20.22 and go more low key for my birthday. God had other plans for both events. The week of my diagnosis day I … Continue reading 2.12.22 Birthday
2.2.22 Trailblazers
First I want to invite you to join me on Tuesday, February 8th from 10-1 CST for a truly inspiring conversation. Register HERE for free and you’ll definitely see a familiar face. Her ALS Story is receiving The Jaci and Alex Hermstad Trailblazer Award during this event. “Amyotrophic lateral sclerosis (ALS) afflicts both genders, yet … Continue reading 2.2.22 Trailblazers
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