This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
Life as we know it
9.11.19 Cowtown Affair
Jennifer Corbett and Family, our 2019 honorees, invite you to join us on September 18th for our second annual Cowtown Affair - a cowboy chic event showcasing Fort Worth's commitment to creating a world without ALS. Last year's event raised more than $28k for ALS Texas. And if you recall, we participated in some unique … Continue reading 9.11.19 Cowtown Affair
8.28.19 Larry’s Challenge
Recently I shared with you about Larry and his current challenge. Jaci and I got to meet Larry in DC this summer and of course fell in love with his campaign. I've been sharing his adventures to keep everyone up to date on his efforts. Kenneth and I have been invited to join Larry for … Continue reading 8.28.19 Larry’s Challenge
8.13.19 Hey God, It’s Me Sunny
I love "Ah-ha" moments. Times when the divine intervention of a higher power is so obviously present and in control that it's absurd to believe in anything less. Times that take your breath away and stay with you days after the incident. Moments when, if you were a cartoon, your jaw would hit the floor … Continue reading 8.13.19 Hey God, It’s Me Sunny
8.12.19 Clinic Adventures
To know me is to love me and accept that I'm late, always. It's nothing personal and not intentional, but it happens more times than not. Knowing this first hand, Jaci and Ashley showed up in time to finish the laborious dressing process and braid my hair. 7:30 is my default leaving time for clinic, … Continue reading 8.12.19 Clinic Adventures
7.26.19 Birthday Bunch
July is always a busy time for our family because just about everyone was born in July. We did a fun weekend celebration on Lake Granbury, all 20 of us. If you're looking for a great place to bring the family or just a small group, this house is for you. We fished, rode jet … Continue reading 7.26.19 Birthday Bunch
7.24.19 Independence
One major struggle with my ALS symptoms is my loss of independence. For the most part my home is set up so that I can get up, down and around by myself. I'm surrounded by amazing, supportive friends and family that step in and help no matter what chaos I drop into their lives. I … Continue reading 7.24.19 Independence
7.23.19 Fall Risk
"There is something wonderfully bold and liberating about saying yes to our entire imperfect and messy life.” – Tara Brach I added to my tattoo collection in early May and man have I gotten amazing feedback from everyone but Lancer. Yes, it's a real tattoo. No, it's not a sticker. Yes, it's permanent. No, it's … Continue reading 7.23.19 Fall Risk
7.18.19 PBA
As promised, I'm excited to play catch-up with y'all on all of the recent chaos SunnyStrong has been participating in. Rather than recap in order, I'm just going to throw out different topics we've yet to discuss and see how it falls. Sound good? Back in March, Kenneth and I had a couple of interviews … Continue reading 7.18.19 PBA
CNN Shines Light on “Iron Horse Tour” of MLB Ballparks
Today, CNN featured a profile on Larry Falivena, a person living with ALS since 2017. Larry is visiting all 30 Major League Baseball parks in one season to raise awareness of ALS as part of The ALS Association’s Challenge Me campaign. He began his “Iron Horse tour” on May 30.
“If my time is truly limited, I want to use it the best way possible,” Larry said in his CNN interview. “So, the two thoughts in my head were: I want to do something with my family, and I want to do something that’s going to have an impact against ALS.”
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