That's how my friend Sara Cooper started every post, "And then this happened" always progressing her story with excitement and joy. Every time I shared a post she ALWAYS encouraged me by adding the hashtag #letskicksomeals Sara is being memorialized all over social media and her beauty continues to shine on through each post.So, in … Continue reading 6.28.21 And Then This Happened
Life as we know it
5.26.21 We Can’t Wait
Yesterday I had the opportunity to give my patient testimony to the FDA. It was recorded in case you missed it. “In the immediate future, we will be asking the FDA to recommit to its 2019 ALS clinical trial guidance, to explain how it has implemented it, and how it plans to get effective treatments to people with ALS faster.We will be asking for a detailed … Continue reading 5.26.21 We Can’t Wait
4.30.21 It’s Gonna Be May
Let the Justin Timberlake memes fly because tomorrow it’s gonna be May!! In the US May is recognized as ALS Awareness Month which means we’ve got work to do. Every day is ALS Awareness in my little world so enrolling y’all for the cause makes it all the more fun. I’ll be honest, in years … Continue reading 4.30.21 It’s Gonna Be May
3.9.21 Finish Well
Philippians 1:21 “For to me, living means living for Christ, and dying is even better.” Y’all have met my friend Steve Martin here, HERE, and lots of posts on social media. His wife posted yesterday letting us know that he is comfortably transitioning to Heaven. Their faith in God’s divine grace is pouring through each … Continue reading 3.9.21 Finish Well
2.21.21 Surviving the Worst
As the snow continues to melt away from this insane week in Texas, I welcome the time to reflect on the goodness that was exemplified by many in need of basic essentials themselves. For the record, I was among the fortunate few that maintained electricity and water for most of the storm, only losing water … Continue reading 2.21.21 Surviving the Worst
1.29.21 Deported
We recently discussed my newest additions, depression and anxiety, and today I’d like to elaborate on the latter. In the last week or so I’ve had two separate experiences with this bulbous, suffocating monster that I’m hoping will bring some joy to your Friday. Our first adventure takes us to the scary city of Dallas … Continue reading 1.29.21 Deported
1.20.21 Celebrating Life
6 years ago today I posted the following picture on social media. I hadn’t yet announced my diagnosis, hadn’t even grasped the reality of what was happening, just knew it was going to an important reminder for the days to come. Now, we’re 6 years in and life is crazy because of 2020, pandemic, divorce, … Continue reading 1.20.21 Celebrating Life
1.4.21 4 Years O’Bloggin’
Yesterday was my 4 year blog’oversary! This little pet project has come a very long ways from it’s humble beginning. Last year, this blog was viewed in more than 90 different countries - I don’t think I can name that many countries. We have also surpassed the 100k views mark which just blows my mind. … Continue reading 1.4.21 4 Years O’Bloggin’
12.30.20 Death Becomes Her
Easily one of my favorite movies, fyi. When I got my diagnosis, I was given lots of resources, people to meet, and decisions to make. The doctors, the ALS Texas staff, and loving friends made sure I was covered. Even after almost 6 years, it’s easy to get back to that overwhelmed state. One thing, … Continue reading 12.30.20 Death Becomes Her
12.28.20 Goal Crushing
In May my friend circle grew to include more reading friends when we hosted the #TalkALSToMe virtual book club. These friendships lead to another collective reading project called “10 By 2020 End”. Thanks to my friend Tara, I’ve been an avid Skimm’er for the last 6 years. The Skimm “breaks down the complicated and unsexy … Continue reading 12.28.20 Goal Crushing
