With heavy hearts, The ALS Association joins the ALS community in celebrating the legacy and mourning the loss of Pete Frates, who died Monday at age 34 after a seven-year battle with ALS.
Pete lived a Hall of Fame life.
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Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone
My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here
As we wrap up Caregiver Month, I'd like to thank each person who plays the role for another. In Jeff Foxworthy fashion, you might be a caregiver if: you've ever helped us get from one place to the other you've ever got us dressed you've ever held our hand in a store you've ever helped … Continue reading 11.30.19 Caregivers
I've removed all the unnecessary hair, and what's remaining has been waxed, cut, and colored accordingly. My suitcase is bulging with who knows what, and I can already think of 5 things I'll have to get there. You'd think I'd be a pro by now, we'll see what happens. We are soon to board the … Continue reading 11.29.19 This is for you, pALS
All things chaos, #alssymp and Sunny Putters & Gutters Lampasas
Y'all know me, always late and behind. It's part of my charm, er something like that. Anyways, let's catch up a bit shall we? Friday the 8th was clinic day. Tonya and I had so much fun yakin' and catching up that we didn't get a single picture. So you'll just have to trust me … Continue reading 11.14.19 Catching Up
November is National Family Caregivers Month. I read this post a while back and it stuck with me. I'm a big fan of Kristin Neva - you can find her books here. This is a sensitive and evolving topic, in our house and marriage. I hope y'all find something thought provoking in Kristin's post below. Happy … Continue reading 11.11.19 Caregiver
November is National Family Caregivers Month. Join The ALS Association in honoring caregivers throughout the month.
“Being a caregiver of someone with ALS is incredibly challenging, and my role hasn’t even begun to be that physical yet,” said Jen LeVasseur. Her husband, Noel, was diagnosed with ALS in 2017, just over a year after they were married.
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