I had my bloodwork done a few months ago and turns out my vitamin d was nearly nonexistent. Dr. Heitzman made me promise to get my butt outside and in the sunshine. Simultaneously the counselor I was seeing at the time suggested that I needed to increase my antidepressant because I wasn't feeling very "Sunny". … Continue reading 3.16.19 Sunshine
Life as we know it
3.7.19 Scooter Gang
Washington DC is very accessible so we took advantage of the sunshine and the sights. This was Kacy's first trip to DC, and my first was fast and furious, so this was a chance for both of us to tour our Nation's Capital. They had these scooters for rent everywhere in downtown so of course … Continue reading 3.7.19 Scooter Gang
3.6.19 Capitol Hill
We had 6 meetings on Tuesday, SIX! It was an exhausting day, but so worthwhile. Kacy and I slept very well that evening, and Garth tried to die on us but TJ Maxx saved the day by letting us charge him up on the way home. We learned the importance of emphasizing the -sks in … Continue reading 3.6.19 Capitol Hill
3.5.19 #RareDC2019
The week was jam packed with all kinds of events, all in different places on Capitol Hill and all involving different rare disease communities. We learned a lot about different efforts being made to shed more light on the rare diseases of the world, and met many fighters trying to engage with others that share … Continue reading 3.5.19 #RareDC2019
3.4.19 What a Week
Washington DC is a truly magical place. It's where history meets future, and possibilities are endless. It was a wonderful week spent with my girl, and how wonderful it was to have her all to myself all week. Kacy and I have traveled together many times, and thankfully for me she keeps agreeing to … Continue reading 3.4.19 What a Week
Guest Post: Love Changes Everything
via Guest Post: Love Changes Everything
2.25.19 Join Us in DC on the Livestream
Email from the Every Life Foundation: We are excited many of you will be joining us in DC for Rare Disease Week on Capitol Hill. For those who are not able to travel to Washington, DC, there are a number of ways to participate from your own home! Please feel free to share with your … Continue reading 2.25.19 Join Us in DC on the Livestream
2.22.19 Dr. Sunny Einstein
For those of you who are new to this party, it's important that you know: I, Sunny Brous Erasmus like to go. Go everywhere, talk to everyone, eat everything. cute birthday bag from my tribe that describes me perfectly It takes a lot more prep work and planning nowadays to get me out the door … Continue reading 2.22.19 Dr. Sunny Einstein
2.19.19 Rare Disease Week
Kacy and I are headed to DC in the name of ALS Awareness. We are both so, so, SO excited for all of the different events going on during Rare Disease Week. Personally I'm excited to fight for ALS from a slightly different front. Because this week isn't devoted to any one specific disease, … Continue reading 2.19.19 Rare Disease Week
2.18.19 SunnyStrong Heads Back to DC
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide FEBRUARY 12, 2019 BY MARY CHAPMAN IN NEWS. Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they … Continue reading 2.18.19 SunnyStrong Heads Back to DC
