9.13.19 Sunny Loves Tom

This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom

9.11.19 Cowtown Affair

Jennifer Corbett and Family, our 2019 honorees, invite you to join us on September 18th for our second annual Cowtown Affair - a cowboy chic event showcasing Fort Worth's commitment to creating a world without ALS. Last year's event raised more than $28k for ALS Texas. And if you recall, we participated in some unique … Continue reading 9.11.19 Cowtown Affair

8.13.19 Hey God, It’s Me Sunny

I love "Ah-ha" moments. Times when the divine intervention of a higher power is so obviously present and in control that it's absurd to believe in anything less. Times that take your breath away and stay with you days after the incident. Moments when, if you were a cartoon, your jaw would hit the floor … Continue reading 8.13.19 Hey God, It’s Me Sunny

8.12.19 Clinic Adventures

To know me is to love me and accept that I'm late, always. It's nothing personal and not intentional, but it happens more times than not. Knowing this first hand, Jaci and Ashley showed up in time to finish the laborious dressing process and braid my hair. 7:30 is my default leaving time for clinic, … Continue reading 8.12.19 Clinic Adventures

7.23.19 Fall Risk

"There is something wonderfully bold and liberating about saying yes to our entire imperfect and messy life.” – Tara Brach I added to my tattoo collection in early May and man have I gotten amazing feedback from everyone but Lancer. Yes, it's a real tattoo. No, it's not a sticker. Yes, it's permanent. No, it's … Continue reading 7.23.19 Fall Risk

CNN Shines Light on “Iron Horse Tour” of MLB Ballparks

The Official Blog of The ALS Association

Today, CNN featured a profile on Larry Falivena, a person living with ALS since 2017. Larry is visiting all 30 Major League Baseball parks in one season to raise awareness of ALS as part of The ALS Association’s Challenge Me campaign. He began his “Iron Horse tour” on May 30.

“If my time is truly limited, I want to use it the best way possible,” Larry said in his CNN interview. “So, the two thoughts in my head were: I want to do something with my family, and I want to do something that’s going to have an impact against ALS.”


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