“No fault, no blame, nobody done no wrong- That's just the way it sometimes goes. Sometimes two people just don't get along, it's time to hit the road. Goodbye, farewell, so long, vaya con dios. Good luck, wish you well, take it slow. Easy come girl, easy go.” George Strait I'm thankful for song lyrics, … Continue reading 6.26.20 Divorced
Life as we know it
6.16.20 Awareness Challenge Continued
I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued
4.22.20 Dance Me To The End
I'm not crying, it's allergies, you're crying, pass me the ice cream. Yes, more ice cream. ALS just really, really sucks. Book 3 for our Talk ALS To Me virtual book club is "Dance Me To The End: Ten Months and Ten Days With ALS" by Alison Acheson. We get a personal look into the … Continue reading 4.22.20 Dance Me To The End
4.21.20 Pursuit of Happiness From Heels to Wheels
I knew from the moment I saw this book on Instagram that it was going to be great. I know you're not supposed to judge a book by it's cover, but hot damn Mayuri is gorgeous so if ever there was an exception, this is it. Had I known how close to home this book … Continue reading 4.21.20 Pursuit of Happiness From Heels to Wheels
4.20.20 My Guardian Angel Wears Antiperspirant
I can't help but think that Carole is smiling knowing that we're rolling her book out on 4/20. Book 1 of 5 for our Talk ALS To Me Virtual Book Club for ALS Awareness Month is “My Guardian Angel Wears Antiperspirant” by Carole Breton and Jeanne Bean Murdock. We will meet virtually to discuss this … Continue reading 4.20.20 My Guardian Angel Wears Antiperspirant
4.17.20 ALS Awareness Month Passion Project
We are SO excited to announce our passion project for ALS Awareness Month coming up in May. More info to come. Happy Friday!
Noninvasive Ventilators Removed from Competitive Bidding in Big Win for ALS Community
The Medicare program at the Centers for Medicare & Medicaid Services removed noninvasive ventilators from competitive bidding for durable medical equipment. The decision will keep the devices out of competitive bidding for at least three years and is a victory for ALS advocates. The ALS Association and its partners have led an intense lobbying campaign against competitive bidding for noninvasive ventilators for more than a year. The Medicare program cited COVID-19 in announcing the move.
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Questions and Answers about COVID-19 and Its Impact on People with ALS
March 23, 2020 – We have received many questions about COVID-19 and its impact on people with ALS, their families, and their caregivers. We convened a panel of volunteers and staff to answer these questions – their bios are at the bottom. This situation is rapidly changing. We will update this FAQ as we receive more questions and more current information. If you have questions, please email questions@alsa-national.org.
Also, if you would like to hear our panel discuss these issues on a podcast, please check out the March 19 episode of Connecting ALS at ConnectingALS.org.
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Medicare Coverage for Telehealth Visits Expanded During COVID-19 Pandemic
In response to congressional action, The Centers for Medicare and Medicaid Services notified providers of a new option for expanded Medicare coverage for telehealth visits. These changes temporarily remove originating site and geographic restrictions from coverage of telehealth under Medicare fee-for-service. This coverage applies to allMedicare-approved telehealth services.
The government temporarily waived restrictions on telehealth in Medicare fee-for-service to enable more seniors to access care from their own homes during the public health emergency brought on by the coronavirus. The provisions were included in the Coronavirus Preparedness and Response Supplemental Appropriations Act.
The telehealth waiver applies to treatment of all diagnosis during the Public Health Emergency, not just COVID-19-related visits.
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3.18.20 Wild Animals
Did you know that March 12th is celebrated as the birthday of Girl Scouts? 2020 marks the 108th birthday of this wonderful organization that played a significant role in my childhood. Also, I was awarded this fun honor a few years ago from the Girl Scouts of Texas Oklahoma Plains. Woman of Distinction - June … Continue reading 3.18.20 Wild Animals
