Remembering Pete Frates, Co-Founder of the ALS Ice Bucket Challenge

The Official Blog of The ALS Association

With heavy hearts, The ALS Association joins the ALS community in celebrating the legacy and mourning the loss of Pete Frates, who died Monday at age 34 after a seven-year battle with ALS.  

Pete lived a Hall of Fame life. 

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12.3.19 Cheaters for Everyone

Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone

12.2.19 It’s Tomorrow Here

My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here

11.29.19 This is for you, pALS

I've removed all the unnecessary hair, and what's remaining has been waxed, cut, and colored accordingly. My suitcase is bulging with who knows what, and I can already think of 5 things I'll have to get there. You'd think I'd be a pro by now, we'll see what happens. We are soon to board the … Continue reading 11.29.19 This is for you, pALS

11.11.19 Caregiver

November is National Family Caregivers Month. I read this post a while back and it stuck with me. I'm a big fan of Kristin Neva - you can find her books here. This is a sensitive and evolving topic, in our house and marriage. I hope y'all find something thought provoking in Kristin's post below. Happy … Continue reading 11.11.19 Caregiver

Show Appreciation to a Caregiver During National Family Caregivers Month

The Official Blog of The ALS Association

November is National Family Caregivers Month. Join The ALS Association in honoring caregivers throughout the month.

“Being a caregiver of someone with ALS is incredibly challenging, and my role hasn’t even begun to be that physical yet,” said Jen LeVasseur. Her husband, Noel, was diagnosed with ALS in 2017, just over a year after they were married.

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