Have you ever heard someone talk and and know you had to get closer to them? Aside from Fallon and Seinfeld, I'd never had that overwhelming desire before I heard Dr. Bedlack speak at ALS Advocacy in June. Y'all this mans voice is more smooth than his wardrobe. I leaned over to Jaci and said, … Continue reading 9.25.19 CRLI Research Ambassadors
Life as we know it
9.24.19 Can You Dig It?
"Tag Team, back again, Check it to wreck it, let's begin. Party on, party people, let me hear some noise" Team SunnyStrong is back for our 5th Walk to Defeat ALS! Register HereSaturday, October 19, 2019 Trinity Park in Fort Worth 9 AM | 3 mile course "I'm takin' it back to the old school … Continue reading 9.24.19 Can You Dig It?
9.13.19 Sunny Loves Tom
This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
9.11.19 Cowtown Affair
Jennifer Corbett and Family, our 2019 honorees, invite you to join us on September 18th for our second annual Cowtown Affair - a cowboy chic event showcasing Fort Worth's commitment to creating a world without ALS. Last year's event raised more than $28k for ALS Texas. And if you recall, we participated in some unique … Continue reading 9.11.19 Cowtown Affair
8.28.19 Larry’s Challenge
Recently I shared with you about Larry and his current challenge. Jaci and I got to meet Larry in DC this summer and of course fell in love with his campaign. I've been sharing his adventures to keep everyone up to date on his efforts. Kenneth and I have been invited to join Larry for … Continue reading 8.28.19 Larry’s Challenge
8.13.19 Hey God, It’s Me Sunny
I love "Ah-ha" moments. Times when the divine intervention of a higher power is so obviously present and in control that it's absurd to believe in anything less. Times that take your breath away and stay with you days after the incident. Moments when, if you were a cartoon, your jaw would hit the floor … Continue reading 8.13.19 Hey God, It’s Me Sunny
8.12.19 Clinic Adventures
To know me is to love me and accept that I'm late, always. It's nothing personal and not intentional, but it happens more times than not. Knowing this first hand, Jaci and Ashley showed up in time to finish the laborious dressing process and braid my hair. 7:30 is my default leaving time for clinic, … Continue reading 8.12.19 Clinic Adventures
7.26.19 Birthday Bunch
July is always a busy time for our family because just about everyone was born in July. We did a fun weekend celebration on Lake Granbury, all 20 of us. If you're looking for a great place to bring the family or just a small group, this house is for you. We fished, rode jet … Continue reading 7.26.19 Birthday Bunch
7.24.19 Independence
One major struggle with my ALS symptoms is my loss of independence. For the most part my home is set up so that I can get up, down and around by myself. I'm surrounded by amazing, supportive friends and family that step in and help no matter what chaos I drop into their lives. I … Continue reading 7.24.19 Independence
7.23.19 Fall Risk
"There is something wonderfully bold and liberating about saying yes to our entire imperfect and messy life.” – Tara Brach I added to my tattoo collection in early May and man have I gotten amazing feedback from everyone but Lancer. Yes, it's a real tattoo. No, it's not a sticker. Yes, it's permanent. No, it's … Continue reading 7.23.19 Fall Risk
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