Looking forward to celebrating Holly and Stacy Crowder tonight at the ALS Texas Celebrity Bowling Classic! Hear part of Stacy's story here: via Kids Inspire Us to Fight ALS
Life as we know it
Reblog: Let’s Get Physical: The ALS Exercise Debate
Let’s Get Physical: The ALS Exercise Debate AUGUST 8, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “Use it, or lose it.” That was the motivational summary statement during my first post-ALS diagnosis physical therapy (PT) session. As my condition’s horrific prognosis continued percolating in my brain, I replied, … Continue reading Reblog: Let’s Get Physical: The ALS Exercise Debate
8.15.18 August Clinic
Clinic was great, clinic is always great. I get an emotional burst from going, from being in the presence of people who care about me, about my successes and my struggles with this disease. The therapists, doctors, and staff are my family, we have been in this fight together for 3.5 years - we're all … Continue reading 8.15.18 August Clinic
Reblog: Physicians Asked to Help ALS Patients Die…
Physicians Asked to Help ALS Patients Die Must Evaluate Motivations, Alternatives, Case Report Says AUGUST 13, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. Physicians who help amyotrophic lateral sclerosis (ALS) patients die should carefully evaluate their motivations, capacity, and care goals, while also discussing alternatives with their patient, according to researchers. An ALS patient case and commentary, “How Should … Continue reading Reblog: Physicians Asked to Help ALS Patients Die…
8.9.18 There’s a Resource Guide for That
Y'all know I love Clinic Days. It's a huge "Why" for my energy and efforts. It's my support group. It's my refuge from this scary disease. It's my people, it's new people. It's my family. And. It. Is. TOMORROW! I've got Cromies, I've got Fruges, I've got Locks, I've got donuts (hopefully). I know I've … Continue reading 8.9.18 There’s a Resource Guide for That
Reblog: Finding my Sunshine
via Finding my Sunshine I just have to balance my “sunny ups” with listening to my body. I am learning that I need a day to recover from the visitors and outings, but that doesn’t diminish the joy that I find those active days. It just means that I have to be resilient and creative … Continue reading Reblog: Finding my Sunshine
8.3.18 Reblog: Sunny Brous Erasmus: ‘As Long as We’re Here, We’re in This Together’
hi 🙋🏻♀️ my name is Sunny and I have a confession to make: sometimes during interviews I get the timeline wrong when talking about Kenneth 🤦🏻♀️ and when I say “sometimes” I really mean all of the times. Enjoy this cool post from the ALS Association! via Sunny Brous Erasmus: ‘As Long as We’re Here, We’re in This Together’
7.30.18 Happy Birthday, Kenneth!
"As long I live, whatever I do, As great as it is, you know what's a bummer? I ain't ever gonna beat this summer with you. Baby it's true, The taste of your kiss is so bittersweet. I ain't gonna beat, no way I'm gonna beat this summer with you" - Brad Paisley Today is Kenneth's 31st birthday! I … Continue reading 7.30.18 Happy Birthday, Kenneth!
Reblog: Keeping the Faith
Keeping the Faith JUNE 20, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. ALS has been a blessing to me. You read that right — a blessing. Oh, it has been many other things: ordeal, handicap, curse, millstone, scene-stealer, tormentor, humiliator, predator, interloper, income garnisher, bully, danger, satirist, infidel, … Continue reading Reblog: Keeping the Faith
Reblog: ALS is No Laughing Matter but a Little Humor Helps
ALS Is No Laughing Matter but a Little Humor Helps JUNE 26, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Having ALS is certainly no laughing matter, but I’ve found that living with it can give rise to many humorous moments. Most of my “laugh out loud” episodes are the result of … Continue reading Reblog: ALS is No Laughing Matter but a Little Humor Helps
SunnyStrong 