12.21.17 And Theeeeeennn

I've been posting some pretty blah stuff lately, sorry for any worry or concerns. All is good in the hood, promise!! So last week I got a call from Nina the Great that they got some info back on the Rasagaline trial. In case you forgot, I joined this drug trial during my second opinion … Continue reading 12.21.17 And Theeeeeennn

12.20.17 Know Thyself — Before It’s Too Late

The Daily Stoic "Death lies heavy upon one who, known exceedingly well by all, dies unknown to himself.” SENECA, THYESTES , 400 Some of the most powerful and important people in the world seem to have almost no self-awareness. Although total strangers know endless amounts of trivia about them, celebrities—because they are too busy or … Continue reading 12.20.17 Know Thyself — Before It’s Too Late

A New Approach to Preventing and Identifying Depression by Rachel Doboga

“Depression is a sneaky beast. It’s the monster beneath the bed, waiting until you’re vulnerable to grab you by the ankles, drag you into its dark, misty kingdom and leave you to wander alone.” via A new approach to preventing and identifying depression

12.18.17 Extrovert

I enjoy every post I bring to y'all, if I didn't you would not be reading it, promise. This one is one of my favorite ones though, I learned a little bit rather than just talking aimlessly. For example, extroverts are documented as follows: "When you are facing a problem, you prefer to discuss the … Continue reading 12.18.17 Extrovert

12.15.17 Graceful I Am Not

Thank goodness the saying isn't "Gracefulness is next to Godliness" otherwise I'd be in big, big trouble. You see, I fall down, a lot. I blame it on not picking up my feet, and so does my mother. It was exceptionally bad during the Croc phase - you know what I'm talking about, we're all … Continue reading 12.15.17 Graceful I Am Not

A Day in the Life at the ALS Clinic – The Berkley Family

Carmen's story is a lot like mine: diagnosed in January '15, completely lost but determined, and worried about the toll ALS is having on our families.

12.13.17 Dia de Importancia

Today is a big day in my little world. Though the importance has little to do with me personally, it's the celebration of two of my closest friends that gives this day so much meaning. Without this day, the people below, and the significance of December 13th my life would look completely different, in the … Continue reading 12.13.17 Dia de Importancia

Round 3, 9&10

and just like that, we're done with round 3. Round 4 starts 12.29.17. ALSFRS-R Scores: 12.10.17: 34 11.16.17: 35 10.19.17: 34 according to Radicava.com : ALS Functional Rating Scale–Revised (ALSFRS-R) The ALSFRS-R consists of 12 questions that evaluate 4 domains (fine motor, gross motor, bulbar, and respiratory function) in patients with ALS.1 Items: speech, salivation, … Continue reading Round 3, 9&10

Fight Depression by Keeping Watch on Ourselves and Others

DECEMBER 4, 2017  BY RACHEL DOBOGA IN COLUMNS, THE MIGHTY MIND - A COLUMN BY RACHEL DOBOGA. Depression is a sneaky beast. It’s the monster beneath the bed, waiting until you’re vulnerable to grab you by the ankles, drag you into its dark, misty kingdom and leave you to wander alone. I’m just stumbling out of a month-long … Continue reading Fight Depression by Keeping Watch on Ourselves and Others

Round 3, 7&8

de accessed the port after last nights infusion and it made this suction kind of pop when it came out. i jumped, and we almost lost kenneth. poor guy, he's come a long way with all this stuff. today's appointment included cookies #winning two more infusions and we're done with round 3, hooray!