11.11.19 Caregiver

November is National Family Caregivers Month. I read this post a while back and it stuck with me. I'm a big fan of Kristin Neva - you can find her books here. This is a sensitive and evolving topic, in our house and marriage. I hope y'all find something thought provoking in Kristin's post below. Happy … Continue reading 11.11.19 Caregiver

10.31.19 Temporary?

12 days later, I'm starting to think these temporary tattoos aren't so temporary - ooops! This is my souvenir from the FW ALS Walk on Saturday, Oct 19th. Cindy the great out did herself once again with team spirit and getting everyone decked out. Huge "Thank You" to Dan and Susan at PuckettPro for getting … Continue reading 10.31.19 Temporary?

10.30.19 Provision

Y'all, I'm going to be completely honest for a second. No sugar coating, no pretending, no nothing. Are you ready for this truth bomb? I have absolutely no idea what I'm doing. Like none. Zip. Zero. Nada. We're coming up on my 5 year anniversary of being diagnosed with a disease that was supposed to … Continue reading 10.30.19 Provision

10.15.19 Cowtown Affair Success

We met as a committee last week to wrap up the 2nd Annual Cowtown Affair that was held on 9.18.19 and learned that over $58k was raised at this year's event. That's double from last year. The event sold out, the Chicken Shit Bingo was a hit, and lots of love was poured over families … Continue reading 10.15.19 Cowtown Affair Success

10.14.19 Ready to Walk?

  Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. If you ordered a shirt they will be at the walk - otherwise I'll mail out orders next week. Here are the details that you need to know for Saturday: … Continue reading 10.14.19 Ready to Walk?

Reblog: Envisioning a Bright Future for Our Survivors

Envisioning a Bright Future for Our Survivors BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. From time to time, a comment in response to one of my columns reveals that the commenter has lost someone to ALS. The first time it happened, I paid it little mind. Subsequent occurrences aroused … Continue reading Reblog: Envisioning a Bright Future for Our Survivors