I’m failing y’all in the weekly blogs, so get ready for some double doses. Last week I got the opportunity to go to Washington DC in the name of ALS advocacy. I was able to attend because of generous support from the sale of Super Bowl squares and winners who donated their winnings back. Thank … Continue reading 2.23.23 Sunny Goes to DC
Adventures for SunnyStrong
1.27.23 Chariot of Choice
Settle in, friends. Lots to see and learn here. First, SunnyPalooza. Birthday’s are just more fun when they fall on Saturday, amirite? So this year for the big 3-6 we’re throwing a full blown multi event par-tay! ALS One announced that they were bringing back the 50 in 1 Bar Crawl for ALS and Team … Continue reading 1.27.23 Chariot of Choice
1.21.23 Actin’ Up
Back in April, Mah and I went to Maine to meet some of my HAS girls and drink some beer. It was there that I have a clear, very loud memory of Paul Kessler telling me “you gotta come to our house, we have an elevator!” So to celebrate my 8 year diagnosiversary I took … Continue reading 1.21.23 Actin’ Up
1.13.23 Anti-hero
Nothing screams Sunny quite like starting the new year on the 13th day, and a Friday the 13th at that. If I’m going, I’m going to be late, it’s just who I am at my core. Have no fear, the chaos continues. The first 13 days of of this year have caused me to step … Continue reading 1.13.23 Anti-hero
10.14.22 Y’all Ball
Instead of doing an ALS walk this year we’re hosting the Y’all Ball. I cannot tell you how excited I am to party with everyone in Hico! Games, silent auction, trivia, snacks and pizza - what more could you want? Oh and it’s BYOB. Honestly I didn’t know what “thrift store chic” looked like until … Continue reading 10.14.22 Y’all Ball
9.29.22 Girl Gang
By now y’all should know about my girl gang, Her ALS Story. We spent some time together in Madison, WI and it was everything we dreamed it would be. 15 women diagnosed with ALS before the age of 35 came together from around the country for a few days of love, laughter, support, and all … Continue reading 9.29.22 Girl Gang
8.22.22 August Clinic Update
Do you ever tell people something in your head but forget to hit send? I've always been at a hefty level of insanity, but I swear it’s been worse since I had covid in January. I have MANY blog posts to purge from my head and I plan to get those out to you over … Continue reading 8.22.22 August Clinic Update
7.25.22 Week 1 Fight ALS Film Festival
So Much So Fast Watch Film Watch Film Discussion Meet ALS TDI This film makes you proud to be a human This was the perfect film to kickoff the Fight ALS Film Festival because it's all about the love and determination of a family. We met a lot of the Heywood family in our discussion, … Continue reading 7.25.22 Week 1 Fight ALS Film Festival
6.20.22 Kendra Scott Giveback Party
I’d like to personally invite you to contribute to the Her ALS Story Wellness Retreat by shopping our Kendra Scott Giveback event. During our party, 7/20 - 7/22, 20% of sales online and in store using the code: GIVEBACK-CGOSH will go to offset various costs of the retreat. This coming fall, we are organizing a … Continue reading 6.20.22 Kendra Scott Giveback Party
6.14.22 Lou Gehrig Day Success
Lou Gehrig Day was entirely too much fun. We had a great turnout and got to meet other pALS in the fight. I'm always proud of this community, the love and support that flows constantly is good for the soul. Mark your calendars for June 2, 2023 for the 3rd Annual Lou Gehrig Day. Lou … Continue reading 6.14.22 Lou Gehrig Day Success
SunnyStrong 