Round 8 started Monday and so far nothing too exciting to report. With Radicava, no change is the goal because this drug is supposed to slow the progression. No news is good news. I realized recently that we haven't really discussed why I'm taking this medication, it's importance in the fight against in ALS, and … Continue reading 4.25.18 Round 8 Radicava Ridiculousness
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
4.24.18 Forgiveness
We've discussed, in depth, my passion for education. My involvement in college access programs like TRiO, Junior Achievement and GForce is part of who I am at my core. Education, in my opinion, is the most important investment a person can make - for themselves, for their families, and for their future. I knew that … Continue reading 4.24.18 Forgiveness
4.23.18 Goodbye for Now, Momma Duke
It’s with a heavy heart that we lay our friend to rest, she was truly one of the good ones. Her faith never wavered, even though all of the hardships and pain she endured during her battle with ALS. I’m thankful for her friendship, her constant encouragement and outpouring of love, and for her daughters … Continue reading 4.23.18 Goodbye for Now, Momma Duke
4.19.18 We Have One Month, People
I'm calling today's conference room meeting to remind everyone that May is ALS Awareness Month and we have lots of fun things going! We are exactly one month away from the greatness that is the 14th Annual Hico Steak Cookoff. Join us in Downtown Hico on May 19th for a day of music, food, and … Continue reading 4.19.18 We Have One Month, People
4,18.18 Just Call Me Killmonger
Did y'all see Black Panther? Remember the cousin, Erik Killmonger, played by Michael B. Jordan? He had the raised scars all over? Erik Killmonger : I don't worry about no brand. Check these out. Each one is for a kill. My scars didn't come from kills, obviously, but i'm starting my own pattern of skin … Continue reading 4,18.18 Just Call Me Killmonger
4.17.18 ALS Advocacy Conference
via ALS Advocacy Fly-In a Huge Success, Lead Up to National ALS Advocacy Conference And Carlie and I are going! We are excited to go to DC, to advocate for ALS, and to preach the gospel of SunnyStrong to everyone that will listen! Phil is PUMPED to get another flight under his belt - Carlie, … Continue reading 4.17.18 ALS Advocacy Conference
4.13.18 My Grandma Houston
"And I don't see how you could ever be anything but mine" - Kenny Chesney Well, here we are: day 3 of discussing Saturday's impact - the highs and lows. We got Sheri and JD married, we showered Amanda and Casey, and now we're left to talk about the earth shattering reality that my … Continue reading 4.13.18 My Grandma Houston
4.4.18 Good Ride Cowboy
"He sang life's a highway there's only one way you're gonna get through it." - Garth Brooks How cool is this? The amazing crew out at Lilly G Riding Club are hosting a Trailride for ALS on Saturday, April 14th. Event Info: Dublin City Park to Hico City Park. 7a.m. breakfast. 8 a.m. registration, 9 … Continue reading 4.4.18 Good Ride Cowboy
4.3.18 We are not friends
Round 7 is half way done and Paula the Port and the mean tegaderm aren't being nice. Thankfully Phil had my back.
4.2.18 Reblog of What Makes Me, Me?
Make You Feel my Love "The winds of change are blowing wild and free, You ain't seen nothing like me yet" - Garth Brooks I recently read ALS: A Respiratory Perspective by Kipling A. Jackson and I recommend adding it to your to do list. I sent copies to a few people with the hopes that they … Continue reading 4.2.18 Reblog of What Makes Me, Me?
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