My friend Justin, Brother Brous, saw Garth Brooks in concert last time he was in Dallas. Since then I've been eaten with jealousy and swore to myself that next time he was even remotely close, Kenneth and I were going to see him. Cue Houston Rodeo. Excited is an understatement. Even cooler than Garth being … Continue reading 3.18.18 I’m Shameless
Awareness
Reblog: 9 Ways to Manage Brain Fog
MARCH 8, 2018 BY WENDY HENDERSON One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its … Continue reading Reblog: 9 Ways to Manage Brain Fog
3.16.18 Answer ALS
“ALS IS NOT AN INCURABLE DISEASE, ONLY AN UNDERFUNDED ONE” - Dr. Appel I can’t fund research because, well, I’m broke but good grief I can dang sure donate to research. “Answer ALS is a global project dedicated to developing and implementing a unified strategy to stop Amyotrophic Lateral Sclerosis (ALS) through an aggressively funded … Continue reading 3.16.18 Answer ALS
3.9.18 Spring is a Spring’n
Teased y'all yesterday and liked it! May will be here before we know it so in preparation for ALS Awareness Month we are getting ready! As promised, here are some exciting things we have coming up for SunnyStrong: Justin Boot Raffle Buy your chance to win the Justin Boot! All proceeds will go to SunnyStrong … Continue reading 3.9.18 Spring is a Spring’n
3.8.18 Throwback Thursday
It's been a while since we really chatted about what's been going on. February is easily my favorite month - birthday month, duh - but it always goes by entirely too fast. We didn't do a big birthday bash like normal but we sold the heck out of some Super Bowl squares and over $1500 … Continue reading 3.8.18 Throwback Thursday
3.6.18 Family4Life
We have discussed on many occasions my love for Tarleton State University and how it not only served me as a student while I was enrolled, it has continued to serve me now as an alum. I can still remember the day I called my mom, bored out of my gourd, because even with a … Continue reading 3.6.18 Family4Life
Reblog: With ALS, Self-care Is Vital for Well-being
FEBRUARY 27, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. As a newly diagnosed ALS patient attending an ALS clinic, I received a packet filled with various brochures and helpful information. Attached to one pamphlet I found a small card with the words, “Taking care of myself is not an act of indulgence, … Continue reading Reblog: With ALS, Self-care Is Vital for Well-being
2.27.18 Groundbreaking Ceremony
Y'all know I bleed purple with the best of them, so witnessing Tarleton history in the making makes me a proud alumni! Click here to see the video! Best part of being a member of the Texan family is getting to love on some of my favorites. I cannot tell you enough about the enormous … Continue reading 2.27.18 Groundbreaking Ceremony
2.20.18 Losing My Mind
So remember when our house flooded in January? Yeah we're finally getting flooring done this week, thank goodness. It's been exhausting and dirty and exhausting but I cannot wait to see the final product. Determined to stay optimistic, dammit. ALS Clinic on Friday was fun and marked my 3 year anniversary of being in the … Continue reading 2.20.18 Losing My Mind
2.15.18 Paula the Port
Monday I had a hot date with Nina the Great at UTSW for a punch biopsy for nerve fiber layer density, kachow! This donation was for a couple of friends of my cousin Tyler's who have a lab at UCSF and as you know, research is always in style. Appointment was painless and I got … Continue reading 2.15.18 Paula the Port
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