Keeping the Faith JUNE 20, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. ALS has been a blessing to me. You read that right — a blessing. Oh, it has been many other things: ordeal, handicap, curse, millstone, scene-stealer, tormentor, humiliator, predator, interloper, income garnisher, bully, danger, satirist, infidel, … Continue reading Reblog: Keeping the Faith
Reading
I love to read and enjoy sharing my takeaways
Reblog: ALS is No Laughing Matter but a Little Humor Helps
ALS Is No Laughing Matter but a Little Humor Helps JUNE 26, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Having ALS is certainly no laughing matter, but I’ve found that living with it can give rise to many humorous moments. Most of my “laugh out loud” episodes are the result of … Continue reading Reblog: ALS is No Laughing Matter but a Little Humor Helps
Reblog: Online Forums Source of Empathy and Support for ALS and Other Patients, Study Says
Online Forums Source of Empathy and Support for ALS and Other Patients, Study Says JUNE 21, 2018 BY IQRA MUMAL IN NEWS. Online health forums offers patients with chronic diseases a way to share experiences and develop connections with others in a similar situation — gaining access to a community that can provide both empathy and … Continue reading Reblog: Online Forums Source of Empathy and Support for ALS and Other Patients, Study Says
Reblog: Watch “Mr. Connolly Has ALS” Online Now!
via Watch “Mr. Connolly Has ALS” Online Now!
Reblog: Guest Post: Young Caregivers Received Special Training and Support at National ALS Advocacy Conference
via Guest Post: Young Caregivers Received Special Training and Support at National ALS Advocacy Conference
Reblog: From Balloons to Bubbles
Reblogged from ALS News Today From Balloons to Bubbles: How I Breathe Well with ALS MAY 29, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I know I have no control over how quickly or slowly my ALS progresses, but I can try to hold off the negative effects that … Continue reading Reblog: From Balloons to Bubbles
Reblog: Oral Edavarone
I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone
Reblog: Right to Try Law
Reblogged from ALS News Today US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases JUNE 4, 2018 BY LARRY LUXNER IN NEWS. As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn of Indianapolis tried twice to embrace … Continue reading Reblog: Right to Try Law
Reblog: ALS is What I Have, Not Who I Am
via Guest Post: ‘ALS is What I Have, Not Who I Am’
Reblog: Playing Life as it Lies
via Erin Brady Worsham: Playing Life as it Lies
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