FEBRUARY 27, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. As a newly diagnosed ALS patient attending an ALS clinic, I received a packet filled with various brochures and helpful information. Attached to one pamphlet I found a small card with the words, “Taking care of myself is not an act of indulgence, … Continue reading Reblog: With ALS, Self-care Is Vital for Well-being
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Reblog: Steve Gleason Enduring Voices Act Moves Through House, Heads to Senate
Click HERE to Complete via Steve Gleason Enduring Voices Act Moves Through House, Heads to Senate
Reblog: Divorce or Death, a Real Life Decision
THE BLOG 07/26/2016 09:51 pm ET Updated Dec 06, 2017 Divorce or Death, a Real Life Decision By Jay Smith JAY SMITH 890 When I was diagnosed with ALS, I was given two years to live. Two and a half years later here I am typing this article using my eyes, while being fed through a tube … Continue reading Reblog: Divorce or Death, a Real Life Decision
Reblog: ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014
https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2Fsunny.brous%2Fvideos%2F10100219149410176%2F&width=500&show_text=true&height=1019&appId 8/19/14 via ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014
1.26.18 ‘Just remember you have every right to be here’
“Maybe that memory - plus the data - would give neurologists more confidence to launch into those tough conversations, and we patients wouldn’t have to wait as long to be diagnosed. Or maybe their empathy would empower us to make decisions earlier, before they have to step in and force one when the situation has … Continue reading 1.26.18 ‘Just remember you have every right to be here’
Reblog: Cannabis Looks Promising for Improved Quality of Life
via Cannabis Looks Promising for Improved Quality of Life My two major takeaways from this article: Their goal was to bring patients together with researchers to ask questions and share information, and increase the dissemination of ALS research information in a patient’s “voice”. 91% of those using cannabis said it improved their quality of life … Continue reading Reblog: Cannabis Looks Promising for Improved Quality of Life
1.20.18 Three Years Ago Today
January 20, 2015 is a day that changed my life in so many ways. Yes, I'd give it back if given the chance because ALS sucks, but hear me when I say that not everything that it has brought into my life has been bad. I'm busy, you know it, I know it, ALS fights … Continue reading 1.20.18 Three Years Ago Today
Reblog: Time Matters
Time Matters JANUARY 16, 2018 BY DAGMAR MUNN Among the many challenges I experienced during my early months with ALS was its effect on my perception of time. Before ALS, I pretty much meandered through life in full confidence that many more years lie ahead of me. But with the onset of ALS, all that changed. … Continue reading Reblog: Time Matters
1.10.18 I Owe You a Yoyo Today
Terminal diagnosis at any age progresses emotionally in phases. Some days you go through all of the phases at the same time, others you are blissfully ignorant and in denial. Much like addiction recovery and other step by step programs, you must master the step you're currently stepping on in order to move on to … Continue reading 1.10.18 I Owe You a Yoyo Today
1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Top 10 ALS News Stories of 2017 JANUARY 2, 2018BY CAROLINA HENRIQUES Throughout 2017, ALS News Today brought you daily coverage of amyotrophic lateral sclerosis (ALS)-related advocacy events, clinical studies, and the latest research updates. We have compiled a top 10 list of the most-read ALS news stories of that year, with a brief description of … Continue reading 1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
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