8.18.17 I think I’ll go to Boston 

Well, the day is finally here: Jaci and I are Boston bound for the Patients Like Me study.  Start living better, together PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, others and advance … Continue reading 8.18.17 I think I’ll go to Boston 

8.16.17 Manifest Rambling 

This one may be a stretch mixed with some Ambien Musings but let's call it "E for effort", deal? The part of this sprinkle that stood out most to me was: Things manifest at the right time.  What does that even mean? To me, manifest sounds like what Aladdian had to do to wake up … Continue reading 8.16.17 Manifest Rambling 

7.26.17 July-a-palooza 

July has been one for the books, and we've still have almost a week left in the month! If you would have asked me in January, when I randomly decided to start a #30by30 list and blog about it, where I'd be 7 months later I would have bet the farm on having lost interest. … Continue reading 7.26.17 July-a-palooza 

7.24.17 I Saw God Today 

I forgot to tell y'all how awesome Friday was. Get your popcorn ready, this is a good one: Have you heard the song by King George called "I Saw God Today"? His fingerprints are everywhere,  I just look down and stop and stare, open my eyes and then I swear, I Saw God Today.  Friday, during our … Continue reading 7.24.17 I Saw God Today 

7.19.17 Boomshakalaka

I don't know if you needed to hear this today, but I most definitely did.  No self loathing or "woe is me" crap, more like embracing the you staring back at you in the mirror and acknowledging everything it took to get to this point. Empowerment over pity, Boomshakalaka.  "I don't need a metaphor to … Continue reading 7.19.17 Boomshakalaka

7.12.17 Weird New Study

So, anything goes in the name of science, right? ALS CORE (Community Online Research Engagement) thinks so, too, so they are changing the face of ALS research. From their site: Yes, there is much to be known about the genetics, biochemistry, and environmental factors that play a role in ALS. Yes, there are many experts … Continue reading 7.12.17 Weird New Study