ALSFRS-R: 34
I don’t notice any changes, but it’s not worse and that’s exciting, right? Hopefully getting my port scheduled soon, spoke to the doctors office today.
Taking a two week break then Round 2 is 10 administrations over a 14 day period. Planning to get that started on November 2nd or 3rd.
Excited for two weeks of normalcy and my personal doctor is thankful for the break. Cheers to round 1 completion!
SunnyStrong 
I hope to start round 1 before this weekend or I will be so mad to wait through another weekend. Radicava Ridiculousness – now waiting for the local infusion location so at least it’s closer. I am glad that you got through round 1. And hearing your fun, I am glad it worked out that I got my port first. Again, love the wings!
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i was so excited to see this wings and snap a pic! so glad y’all got started. how is port recovery? i’m excited to get mine
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Port recovery is a piece of cake. Just have to do neck exercises so you don’t end up with tight muscles on one side – slight neck muscle soreness after the surgery.
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