Sunday night I got to return to the program that got me where I am today. Upward Bound is a program that I've blogged about on many different occasions, and before I was "Dorm Mom Sunny" I worked for the UB program at Weatherford College. Sunday evening brought all of my worlds together on one … Continue reading 6.19.18 That’s Why God Made Mexico
I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone
Round 8 started Monday and so far nothing too exciting to report. With Radicava, no change is the goal because this drug is supposed to slow the progression. No news is good news. I realized recently that we haven't really discussed why I'm taking this medication, it's importance in the fight against in ALS, and … Continue reading 4.25.18 Round 8 Radicava Ridiculousness
Round 7 is half way done and Paula the Port and the mean tegaderm aren't being nice. Thankfully Phil had my back.
It's been a while since we really chatted about what's been going on. February is easily my favorite month - birthday month, duh - but it always goes by entirely too fast. We didn't do a big birthday bash like normal but we sold the heck out of some Super Bowl squares and over $1500 … Continue reading 3.8.18 Throwback Thursday
Monday I had a hot date with Nina the Great at UTSW for a punch biopsy for nerve fiber layer density, kachow! This donation was for a couple of friends of my cousin Tyler's who have a lab at UCSF and as you know, research is always in style. Appointment was painless and I got … Continue reading 2.15.18 Paula the Port
had a cute nurse today and Baloo loved her being here
"Train up a child in the way he should go, and when he is old he will not depart from it" (Proverbs 22:6).I have been blessed with an elaborate, intricate circle of family and friends that would take years to decipher and discuss. All of these blessings, memories, and relationships collide one day a year, … Continue reading 2.8.18 My Village
Yesterday was a big day for a couple of reasons: 1. Round 5 of Radicava Ridiculousness is rockin right along - 4 days down, zero excitement to report. 2. It's officially my last week of Short Term Disability and I celebrated by sleeping until 2PM - homegirl was sleepy. 3. Our house is finally getting … Continue reading 1.30.18 Three is my Favorite Numba
ALSFRS-R: 35 Round 4 is done. Round 5 starts 1/26/18 No news is good news, and thankfully no side effects. Other than to the tecaderm, but we knew that. Also, I earned my "dot" where the needle goes so accessing is even easier. see it? see it? see it? another round of radicava ridiculousness complete!