Rating: 3 Notes: today was the first day I felt like I was on a drug - loopy, underwater, tired. We moved the IV up my arm and to the right side, which means I get my hand back this week. Kenneth came for moral support and to refresh because we're on our own … Continue reading Round 1, Day 6
Radicava Ridiculousness
Round 1, Day 5
Rating: 4 Notes: today was our first day flying solo and we had to facetime my personal nurse Tonya but we got it. feeling a little worn down today, might have to do with last nights festivities more than anything, but so far so good. decided my iv stand is named Stan and after 5 … Continue reading Round 1, Day 5
Round 1, Day 4
Rating: 8 Notes: called in the pro to administer the goods, then caught up on life my best friend, my baby mama, my personal nurse is having 3 boys! aunt sunny is ecstatic!
Round 1, Day 3, hindsight
so i didn’t explain how we are going to track this Radicava adventure. The schedule is 14 consecutive days of infusion then two weeks off. Next is 10 infusions over a 14 day period. Then another two weeks off, and the cycle continues with 10 infusions, two weeks off, and so on until further notice. … Continue reading Round 1, Day 3, hindsight
Round 1, Day 2 Radicava’n
Round 1, Day 2 notes: Kenneth joined the infusion party and learned how to administator the drug. only time he went white was when she showed him the needle. Round 1, Day 2 rating: 8 new nails - go see my girl Cami at Fort Worth Nails Salon 2613 Weisenberger St Fort Worth, Texas 76107 … Continue reading Round 1, Day 2 Radicava’n
First Radicava Infusion Complete
Sweet Phil was there for moral support and happy for the break Round 1, Day One Notes: lots to learn but feel great Round 1, Day 1 rating: 8
10.3.17 It’s Here! It’s Here!
Radicava is officially in my possession! If you dumped ice water on your head, thank you! If you criticized those dumping ice water on their head, thank you! If you've walked, ran, or rolled for ALS, thank you! If you watched me throw out the first pitch, or shared it afterwards, thank you! If you … Continue reading 10.3.17 It’s Here! It’s Here!
10.2.17 Mind = Blown
According to this article from the Department of Health and Human Services, “The Food and Drug Administration today announced the approval of riluzole, the first drug that has been shown to prolong the survival of patients with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease.” This article is dated December 12, 1995. Lou … Continue reading 10.2.17 Mind = Blown
SunnyStrong 