Port Party is officially upon us! I’d be lying if I said I wasn’t a nervous wreck. My focus all last week was getting to the wedding, and now that the wedding was perfect I’m left without distractions. Look how beautiful the brand new Powell’s are: (how’s that for distraction?) I’ve never had surgery before, … Continue reading 10.30.17 Surgery Day!
Radicava Ridiculousness
10.23.17 Port Party
Not to be confused with a porta potty Round 1 of Radicava Ridiculousness is done, whoooo hoooooo! As promised, port placement is taking place before round 2 starts. We’re kicking off this “Port Party” on Monday, October 30. Surgery should take about an hour and I’ll be back at work on Tuesday. No more IVs … Continue reading 10.23.17 Port Party
Round 1 Complete!
ALSFRS-R: 34 I don’t notice any changes, but it’s not worse and that’s exciting, right? Hopefully getting my port scheduled soon, spoke to the doctors office today. Taking a two week break then Round 2 is 10 administrations over a 14 day period. Planning to get that started on November 2nd or 3rd. Excited for … Continue reading Round 1 Complete!
Round 1, Day 13 – Part 2
Apparently I am a hard stick, like four attempts to get a vein kind of hard stick. Hopefully this further encourages the port decision, which I’m still working on scheduling. Multiple sticks or not, I got to spend the morning with one of my favorite families: The Fruges. Tom is on day 2 of Radicava … Continue reading Round 1, Day 13 – Part 2
Round 1, Day 13
would be too easy to go 14 days without a hiccup, right? blew my iv tonight. day 13 is to be continued...
Every picture tells a story, don’t it?
My friend, my fellow ALS warrior, my gossip girl of radicava ridiculousness
10.16.17 Here, There, Everywhere
Combining Radicava Ridiculousness with the weekends agenda. Round 1, Day 10 Rating: 8 Notes: Friday was new IV day which means I got to see the wonderful people at Soleo Health. Sometimes, when I’m really lucky, the Chamber of Commerce lets me work for my lunch. Friday was the State of Education luncheon with Dr. … Continue reading 10.16.17 Here, There, Everywhere
Round 1, day 9
Rating: 9 Notes: I feel pretty fantastic today, even Kenneth noticed my increase in energy, spirits, and demeanor. Chalk it up to anything or everything, but we are enjoying a good day. Preview of tomorrow’s post about Mudlove bracelets and mugs. #ALSSucks #SunnyStrong
Round 1, Day 8
Rating: 8 Notes: Stan was super tall tonight during the infusion. Baloo kept bringing me his rope and snuggling, he’s a sweet pup. Today was a good day: I felt good all day got a lot done at work, supported my Jennifer and smooched on my husband happy hump day, friends!
Round 1, Day 7
Half Way! Whooo hooo! Rating: 3 Notes: today was rough, i have definitely felt better. pretty sure this sweet little boy that i kept smooch’n on this weekend got me sick but i’ll take it. kenneth and i had a sweet helper tonight getting the infusion done and Stan was there to support. hopefully i’ll … Continue reading Round 1, Day 7
SunnyStrong 