9.24.18 The Focus of SunnyStrong

We are very excited about tomorrow nights Kendra Scott party! 20% of sales during the party will go directly to SunnyStrong to help with the financial burden associated with this disease. We started the Adventures for SunnyStrong as a way to further involve our friends and family in the fight against ALS. We are always … Continue reading 9.24.18 The Focus of SunnyStrong

9.19.18 Why I Reblog

I don't always explain why I share some articles, some days they are just fillers for the days I don't have content or energy to write. Often it's information that I feel is beneficial to you, the reader, either as a pALS or as an integral part of my support system.  I've found solace in … Continue reading 9.19.18 Why I Reblog

9.18.18 Kendra Gives Back

This whole Adventures for SunnyStrong concept has been beyond amazing. January was the ALS Awareness Basketball Game in Tolar February was Super Bowl Squares  March was the ALS Awareness Softball Game in Hico Surely we did something in April - who knows? May was the Big Red Boot June was the Smokin' for Sunny and … Continue reading 9.18.18 Kendra Gives Back

9.17.18 Last Call for The Cowtown Affair

Fair warning, there's lots of SHOUTING in this email. Proceed at your own risk. The Cowtown Affair is Wednesday - THIS WEDNESDAY! SunnyStrong is excited to be a part of this unique, fun event that is bringing efforts in the fight against ALS straight to Fort Worth. The Cowtown Affair is going to be a … Continue reading 9.17.18 Last Call for The Cowtown Affair

9.13.18 Round 13 is Rollin’

Radicava is becoming so routine that I completely forgot to document Round 12! Hope it was as good for you as it was for me - insert some corny joke about only smoking after sex - so here we are: Lucky Round 13 of Radicava Ridiculousness. Did I tell you I started on Medicare in … Continue reading 9.13.18 Round 13 is Rollin’

Reblog: How I Took a Vacation from ALS

How I Took a Vacation from ALS  SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS

Reblog: ALS Cannot Change Who I Am

ALS Cannot Change Who I Am  SEPTEMBER 5, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS.   “You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed to Tim Robbins, … Continue reading Reblog: ALS Cannot Change Who I Am

9.10.18 The Brouseseses

I think that's how you say it? It's how we said it all weekend. Rain couldn't stop our party. The brides were stunning. The day was beautiful. I have a new sister, y'all! It was an honor and privilege to officiate their wedding, I've included the ceremony below so you can be part of their … Continue reading 9.10.18 The Brouseseses