Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
1.18.19 Four Years of ALS
Sunday marks four years since I was diagnosed with Amyotrophic Lateral Sclerosis. This picture was taken the next day when I returned to work, and life. We've done a lot in 4 years, met lots of people, built a powerful force called SunnyStrong, and celebrated many victories while mourning many losses. ALS sucks, and we … Continue reading 1.18.19 Four Years of ALS
1.17.19 Post-Symposium Fun
After the Symposium we were determined to adventure out and see everything we could of this city we had been in for almost a week. Monday morning we got up at found our way to the Kelvingrove Art Gallery and Museum. All of the public sites in Glasgow were free to attend, so we loaded … Continue reading 1.17.19 Post-Symposium Fun
Wednesday Pick Me Up
https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fteamgleason.org%2Fposts%2F2099903416752063&width=500 Wow. I'm thankful to be on his team. And he said f*ck'n 😉 I'm not the only one with an uncontrollable mouth - Click here if the above video doesn't load.
1.16.19 Pre-Symposium Fun
Let's talk Glasgow, it was amazing. We saw a lot of the city, interacted with locals, and by the end of the trip we knew where we "lived" and how to pay in a new currency. And by we, I of course mean Carlie - y'all know I was lost the entire time. We left … Continue reading 1.16.19 Pre-Symposium Fun
ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND – ALS Texas
HEY! That's Me 🙂 Source: ALS Advocacy in Glasgow: One Advocate's Experience at the 29th International Symposium on ALS/MND - ALS Texas
1.14.19 But This Mouth…
Thursday I had the privileged to speak at the Continuity of Care monthly meeting with my sweet, supermom friend Toni Sudderth. From their website: "Continuity of Care, Fort Worth is a network of healthcare professionals and related industries dedicated to promoting interdisciplinary communication and resources. Continuity of Care (C of C) Fort Worth began … Continue reading 1.14.19 But This Mouth…
Terry Bradshaw Teams Up with The ALS Association to Raise Awareness of ALS
via Terry Bradshaw Teams Up with The ALS Association to Raise Awareness of ALS
Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium
And we were there! My recap of Scotland will be blasting out next week! via Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium
1.9.18 Newton’s Third Law
"For every action, there is an equal and opposite reaction." When your best friend turns 30 AND completes her Masters degree, there is only one way to celebrate: Vegas. Jaci is the definition of hardwork, she completed her degree in 18 months, while changing school districts, teaching AND coaching full time, and while planning and … Continue reading 1.9.18 Newton’s Third Law
