9.18.18 Kendra Gives Back

This whole Adventures for SunnyStrong concept has been beyond amazing. January was the ALS Awareness Basketball Game in Tolar February was Super Bowl Squares  March was the ALS Awareness Softball Game in Hico Surely we did something in April - who knows? May was the Big Red Boot June was the Smokin' for Sunny and … Continue reading 9.18.18 Kendra Gives Back

9.17.18 Last Call for The Cowtown Affair

Fair warning, there's lots of SHOUTING in this email. Proceed at your own risk. The Cowtown Affair is Wednesday - THIS WEDNESDAY! SunnyStrong is excited to be a part of this unique, fun event that is bringing efforts in the fight against ALS straight to Fort Worth. The Cowtown Affair is going to be a … Continue reading 9.17.18 Last Call for The Cowtown Affair

9.13.18 Round 13 is Rollin’

Radicava is becoming so routine that I completely forgot to document Round 12! Hope it was as good for you as it was for me - insert some corny joke about only smoking after sex - so here we are: Lucky Round 13 of Radicava Ridiculousness. Did I tell you I started on Medicare in … Continue reading 9.13.18 Round 13 is Rollin’

Reblog: The Placebo Effect of Fighting ALS

The Placebo Effect of Fighting ALS  JUNE 6, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “I’m afraid you have amyotrophic lateral sclerosis.” My neurologist continued, “Anyone can get it, even myself,” and like Charlie Brown in the classroom, I shut him off completely, reducing his vocal output to a … Continue reading Reblog: The Placebo Effect of Fighting ALS

Reblog: No Room for Pride when ALS Is Involved

No Room for Pride when ALS Is Involved  AUGUST 22, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. "Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior to its impact on … Continue reading Reblog: No Room for Pride when ALS Is Involved

Reblog: How I Took a Vacation from ALS

How I Took a Vacation from ALS  SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS

Reblog: ALS Cannot Change Who I Am

ALS Cannot Change Who I Am  SEPTEMBER 5, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS.   “You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed to Tim Robbins, … Continue reading Reblog: ALS Cannot Change Who I Am

Reblog: “And I Think to Myself, What a Wonderful World!”

ALS is tough on all of us. Wasn't long ago that I told you about my sweet friend Rachel. Here's her latest update: via "And I Think to Myself, What a Wonderful World!" Additional info: THOUGHT POINT: ON FINDING MEANING THROUGH CHRONIC ILLNESS

9.10.18 The Brouseseses

I think that's how you say it? It's how we said it all weekend. Rain couldn't stop our party. The brides were stunning. The day was beautiful. I have a new sister, y'all! It was an honor and privilege to officiate their wedding, I've included the ceremony below so you can be part of their … Continue reading 9.10.18 The Brouseseses