ALSFRS-R: 35 Round 4 is done. Round 5 starts 1/26/18 No news is good news, and thankfully no side effects. Other than to the tecaderm, but we knew that. Also, I earned my "dot" where the needle goes so accessing is even easier. see it? see it? see it? another round of radicava ridiculousness complete!
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
1.10.18 I Owe You a Yoyo Today
Terminal diagnosis at any age progresses emotionally in phases. Some days you go through all of the phases at the same time, others you are blissfully ignorant and in denial. Much like addiction recovery and other step by step programs, you must master the step you're currently stepping on in order to move on to … Continue reading 1.10.18 I Owe You a Yoyo Today
1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Top 10 ALS News Stories of 2017 JANUARY 2, 2018BY CAROLINA HENRIQUES Throughout 2017, ALS News Today brought you daily coverage of amyotrophic lateral sclerosis (ALS)-related advocacy events, clinical studies, and the latest research updates. We have compiled a top 10 list of the most-read ALS news stories of that year, with a brief description of … Continue reading 1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Round 4, days 4 -7
Kenneth knocked out days 4&5 then I brought in a celebrity nurse for days 6&7 of this infusion. Wonderful best friend getaway in Austin for a couple of days of wedding planning and catching up. She completed both infusions and deaccessed the port without passing out, winning! ALS is teaching all of us new things. … Continue reading Round 4, days 4 -7
2017: A Year of Big Advances in ALS Research
Weird Phil
I love Austin and this blonde bestie of mine
1.4.18 Super Bowl Squares for SunnyStrong
Fun Fact: Every 7 years Sunny's birthday falls on Super Bowl Sunday! This year we're combining two of America's favorite things: Gambling and Charity! Each square is $10, 50% of the total will be donated to SunnyStrong and the other 50% divided evenly to each of the 4 Quarter winners. If all 100 squares are … Continue reading 1.4.18 Super Bowl Squares for SunnyStrong
1.3.18 One Year A’Bloggin’
Tomorrow is my one year blog-o-versary, can y'all believe it? Read this in the DailyStoic's book and wanted to share, especially since it talks about not quoting 😉 Thanks for reading with me, us. Cheers to 2018 and everything it has in store for SunnyStrong. STAKE YOUR OWN CLAIM “For it’s disgraceful for an old … Continue reading 1.3.18 One Year A’Bloggin’
1.1.18 Forever Young
I got this tattoo two years ago with two of my best friends, who have the same mark with different meanings. This permanent reminder was chosen in an attempt to put my pain, heartache, and devastation into a physical representation of what I survived during my journey to ALS diagnosis. This tattoo is based on … Continue reading 1.1.18 Forever Young
Round 4, Days 1-3
Ringing in 2018 with round 4 of Radicava Ridiculousness. Had to stick twice to get accessed but I should earn my needle stick scar soon so that won't be an issue. Nothing exciting to report, which is a good thing, so I'm sharing with y'all pics of the fur babies Christmas presents.
SunnyStrong 