For those of you who are new to this party, it's important that you know: I, Sunny Brous Erasmus like to go. Go everywhere, talk to everyone, eat everything. cute birthday bag from my tribe that describes me perfectly It takes a lot more prep work and planning nowadays to get me out the door … Continue reading 2.22.19 Dr. Sunny Einstein
Awareness
2.19.19 Rare Disease Week
Kacy and I are headed to DC in the name of ALS Awareness. We are both so, so, SO excited for all of the different events going on during Rare Disease Week. Personally I'm excited to fight for ALS from a slightly different front. Because this week isn't devoted to any one specific disease, … Continue reading 2.19.19 Rare Disease Week
2.18.19 SunnyStrong Heads Back to DC
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide FEBRUARY 12, 2019 BY MARY CHAPMAN IN NEWS. Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they … Continue reading 2.18.19 SunnyStrong Heads Back to DC
Guest Post: A True Love Story
via Guest Post: A True Love Story
2.13.19 I Don’t Know About You, But I’m Feeling 32
Monday, February 4th was my 32nd birthday. Like any mature, fun-loving adult we had a theme: Rhinestone Cowboy. It was awesome. Of course we had Mexican food and margaritas - Los Vaqueros is wonderful. The party started Saturday with all of us going to our annual family trip to the rodeo for corn dogs. I … Continue reading 2.13.19 I Don’t Know About You, But I’m Feeling 32
2.12.19 Candy Hearts
Did you know that they're not making candy hearts this year? Like at all, none. Last year at February clinic, Jess and I handed out these sweets to everyone as a post Valentine's Day treat. This year we had to get a little more creative: Everyone needs a good straw, right? Everyone needs a silly … Continue reading 2.12.19 Candy Hearts
Voice Your Love, in Honor of People With ALS – ALS Texas
Over time an ALS diagnosis can mean the loss of your ability to work, your ability to walk, and, sadly, your ability to speak. This can leave many people with ALS unable to tell their loved ones, in their own voice, just how loved they are. Families living with ALS say this is one of the … Continue reading Voice Your Love, in Honor of People With ALS – ALS Texas
Advocacy
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care. Source: Advocacy
1.24.19 Good Luck!
We're just going to do the one board this year. Good Luck everybody! Game Rules: Sales will continue until all squares are sold or kickoff on Sunday, February 3th - whichever comes first. All sales will take place online through the SunnyStrong Store and winnings will be paid via paypal on Monday, February 4th. If … Continue reading 1.24.19 Good Luck!
1.19.19 Join Us?
Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
SunnyStrong 