Reblog: No Room for Pride when ALS Is Involved

No Room for Pride when ALS Is Involved  AUGUST 22, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. "Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior to its impact on … Continue reading Reblog: No Room for Pride when ALS Is Involved

Reblog: How I Took a Vacation from ALS

How I Took a Vacation from ALS  SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS

Reblog: ALS Cannot Change Who I Am

ALS Cannot Change Who I Am  SEPTEMBER 5, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS.   “You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed to Tim Robbins, … Continue reading Reblog: ALS Cannot Change Who I Am

Reblog: “And I Think to Myself, What a Wonderful World!”

ALS is tough on all of us. Wasn't long ago that I told you about my sweet friend Rachel. Here's her latest update: via "And I Think to Myself, What a Wonderful World!" Additional info: THOUGHT POINT: ON FINDING MEANING THROUGH CHRONIC ILLNESS

9.10.18 The Brouseseses

I think that's how you say it? It's how we said it all weekend. Rain couldn't stop our party. The brides were stunning. The day was beautiful. I have a new sister, y'all! It was an honor and privilege to officiate their wedding, I've included the ceremony below so you can be part of their … Continue reading 9.10.18 The Brouseseses

Reblog: How to Build Your Own ALS Stress Toolkit

How to Build Your Own ALS Stress Toolkit  JUNE 5, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Just as no two ALS journeys are alike, there is no one-size-fits-all method for dealing with the emotional stress of living with this disease. During this past year of columns, I’ve shared many of the … Continue reading Reblog: How to Build Your Own ALS Stress Toolkit

9.5.18 It’s Wedding Week

Many of you know that I have twin sisters, and that for some reason I rarely talk about them separately. As I type that I realized that it's for safety measures, power in numbers, better to be grouped together rather than singled out. Well, not this week. Y'all know Carlie, she's great and creates perfect … Continue reading 9.5.18 It’s Wedding Week

9.4.18 Sprinkles, Vegetables, and Clayton Landua

August was an impactful month, proof is in the stats: 3035 views 1295 visitors 38 likes 8 comments 23 different countries And that's just on the blog! Facebook stats: 2374 post engagements 1402 video views 4616 people reached We also share our passion on Instagram, LinkedIn, and Twitter. Each of you that has read these … Continue reading 9.4.18 Sprinkles, Vegetables, and Clayton Landua

Reblog: ALS Takes Away a Person’s Livelihood

You may see a familiar face 🙂  Happy Friday! Have a great and safe Labor Day weekend! via ALS Takes Away a Person's Livelihood

8.30.18 Come Home

Softly and tenderly Jesus is calling, Calling for you and for me. See on the portals He's waiting and watching, Watching for you and for me. Come home, come home, Ye who are weary come home. Earnestly, tenderly Jesus is calling, Calling, "O sinner come home" - Will L. Thompson Susan is home. This news makes my heart heavy, both with … Continue reading 8.30.18 Come Home