Awareness

Reblog: Oral Edavarone

/ sunnystrongblog / Leave a comment

I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone

Reblog: Right to Try Law

/ sunnystrongblog / Leave a comment

Reblogged from ALS News Today US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases JUNE 4, 2018  BY LARRY LUXNER IN NEWS. As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn of Indianapolis tried twice to embrace … Continue reading Reblog: Right to Try Law

6.1.18 Saturday the 19th

/ sunnystrongblog / Leave a comment

This should the last catch up post, I told you that week was crazy. So Carlie and I returned from DC on Wednesday and I spent all of Thursday in my jammies relaxing. Hiding out at my mama's house in Hico is good for rest and relaxation. Friday was prep day for the 15th Annual … Continue reading 6.1.18 Saturday the 19th

5.31.18 That’s a Wrap

/ sunnystrongblog / Leave a comment

May is ALS Awareness Month and I think we can all agree that SunnyStrong gave it everything we had. The ALS Association used the theme of "Raise Your Voice" for this year. There are many things that ALS has taken away from me, but my voice is loud and persistent in the fight to end … Continue reading 5.31.18 That’s a Wrap