I've had the honor of serving as a Patient Fellow for the International Symposiums on ALS/MND in both Glasgow and Perth. This Fellowship is about increasing the voice of people with ALS/MND at the Symposium sessions and following up with patient-centric recaps. This year's symposium was held virtually which opened many opportunities, specifically the increase … Continue reading 12.16.20 Guilty By Association
Awareness
12.8.20 Big Day! Huge Day!
Past, Present, Future: The Journey to Advance Innovations in ALS Sponsored by The renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.Highlights of the program include:PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be … Continue reading 12.8.20 Big Day! Huge Day!
12.4.20 Jokes On Me
I stole this picture from Cathy as it adds to the validity of the story. We were in Perth and the weather was as close to perfect as it gets for me. We were discussing the next symposium set for December 2020 in Montreal. I asked Bronson to look up the current weather in Montreal … Continue reading 12.4.20 Jokes On Me
12.3.20 30th Annual International Symposium on ALS/MND in Perth
So, guess what? I never posted my notes and take aways from the conference last year. With this year's symposium kicking off next week, there's no time like the present. I know we discussed some of the fun highlights of the trip, but I'll follow up this post with anything that might have been left … Continue reading 12.3.20 30th Annual International Symposium on ALS/MND in Perth
10.2.20 Last Call for SunnyStrong Shirts
Last call for SunnyStrong shirts! Order here. The Walk to Defeat ALS in Hico is 10.31
10.1.20 See you around, ‘round my Hometown
Hico is gearing up and ready for y’all to join us on 10.31 for the Walk to Defeat ALS in Hico! It’s going to be a fun filled day of shopping, eating, and dancing while raising funds and awareness for ALS. Stay up to date with the event details See y’all soon!
6.16.20 Awareness Challenge Continued
I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued
5.22.20 Perseverance
Last night's book club had every opportunity to flop, but we persevered. Technology issues, poor service, no FB live - everything happened. This group, these conversations are good for my soul. I promise that catching up on our previous meetings will enrich your life. Try it, listen while you're working or driving or showering - … Continue reading 5.22.20 Perseverance
5.19.20 Awareness Challenge
ALS Awareness Month has been amazing! 19 days of absolute awesomeness. We've had some pretty great events so far, and in case you've been living under a rock here's what's been going on with SunnyStrong: May 1: ☀️ I’m Sunny 5️⃣ I’ve been a PALS for 5 years 👢 I live in Hico, TX 💃🏻 … Continue reading 5.19.20 Awareness Challenge
5.7.20 Book 1 Virtual Book Club TONIGHT
Here's a sneak peek of tonight's author spotlight for our #TalkALSToMe Passion Project for ALS Awareness Month. I'm so excited to see this project take life. The stories and authors are adding strength to the fight against this disease. You're going to enjoy getting to know them and learning from their experiences. You're invited to … Continue reading 5.7.20 Book 1 Virtual Book Club TONIGHT
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