January 4th was my 2 year anniversary of blogging. I started this blog as an outlet, mostly entertaining and very little education, but it has blossomed into more than I could ever imagine. The opportunities, the doors that have opened, the friends made are just the beginning of my journey. In 2018 we had a … Continue reading 1.8.19 Top 8 of 2018
Walk to Defeat ALS
Guest Post: ‘It Takes A Village’
via Guest Post: ‘It Takes A Village’
The End of the Journey
via The End of the Journey via Celebrate the life of Kathryn M Manginelli
ALS Organizations Collaborate to Advance New Therapeutic into Trials
Contact: Brian Frederick The ALS Association (202) 464-8612 bfrederick@alsa-national.org FOR IMMEDIATE RELEASE ALS Organizations Collaborate to Advance New Therapeutic into Trials First dose of potential treatment AT-1501 given to humans by Anelixis Therapeutics to determine safety and tolerability Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully … Continue reading ALS Organizations Collaborate to Advance New Therapeutic into Trials
11.26.18 Sustaining the Hope of Survival
this is from my very wisdomous friend, Beth: "With ALS time is my most formidable adversary. Everyday is a battle for productive waking hours. Forcing yourself out of bed in the morning and fending off the urge to return to it by carefully balancing high energy activities like shooting photos with passive ones like long … Continue reading 11.26.18 Sustaining the Hope of Survival
11.22.18 Potatoes
11.14.16 PuraVida Bracelets
Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets
Guest Post: ‘I Would Still Serve My Country’
via Guest Post: ‘I Would Still Serve My Country’
11.8.18 November 3, 2017
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
SunnyStrong 