My friend, my fellow ALS warrior, my gossip girl of radicava ridiculousness
If you are on Facebook with me then you already saw this. I was challenged to post 7 Black and White photos of my life on 7 consecutive days with no people and no explanation. Here they are:
This week I had my port installed on Tuesday, to be ready for Radicava infusions as soon as my infusion supplier sets it up which hopefully will be this week. My surgery was scheduled for 4:40 pm. They told me I could eat until 6 am, so I got up early and did that. Around 8:45 I got a call asking if I could be there at 9:30 for 11:30 surgery. So I quickly showered and got there at 9:30.
I waited in a children’s room with this kid hanging out with me all day
When the nurses heard I ate at 6, they had to go talk to the anesthesiologist. They…
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