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Lent 2018 – Day 27

March 12, 2018February 13, 2018 / sunnystrongblog / Leave a comment

Lent 2018

ALS - SunnyStrong, Erasmus, Lent 2018

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← Lent 2018 – Day 26

Reblog: Guest Post: Patient Voices Matter →

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https://sunnystrong.com/2018/10/18/round-14-done/ #lougehrigsdisease #alsawareness #sunnystrong #alssucks #als #baloobear #radicavaridiculousness #boomerang #labsofinstagram #chocolatelab #smooches #livelifeloud

eeeeeeekkkkkkk #Repost @teamgleason with @get_repost ・・・ It’s a girl!

#Repost @a_life_story_foundation with @get_repost ・・・ Congratulations to Steve and Michel for the birth of a beautiful and healthy baby girl! From our little girl to yours, #nowhiteflags #3lliottmonroe @teamgleason

be still my heart 💜 #Repost @a_life_story_foundation with @get_repost ・・・ Hey @jessseinfeld what do you think! Our founder @kevinswan can only hold his daughter by "wearing" her! He needs a new outward facing carrier now that #3lliottmonroe is almost 8 months! Dads, what do you like? #dadswithbabies #squatforchange

https://sunnystrong.com/2018/10/16/10-16-18-flat-sunny/ #sunnystrong #alssucks #lougehrigsdisease #alsawareness #walktodefeatals #als #flatsunny

#Repost @als with @get_repost ・・・ “I’m not really good at accepting help. I realize I need to start changing that. My wife, Tima, is pretty used to hearing, ‘I got it,’ on a regular basis. I have a very strong group of family and friends. They’re there at any time to do anything. I just need to get used to asking. I try to keep up normal activities, such as dinner out with my wife and lunch and beers with my dad. I also work on my car with my best friend, Charlie, take my stepson to football practice, and take in rugby games with the boys. It’s important now – and more so as I progress— to push myself to participate in life and not let these last years fade away. ALS is a petty thief. Every day I wake up with the knowledge that I’ll most likely lose something. My last steps won’t be into a chair. They’ll be falling down – trying to take one more step. My choice is to live my life to the fullest potential. It’s nothing brave or inspiring. It’s a simple acknowledgement that I have a good life that I don’t want to squander on self-pity and negative thoughts.” - Mike Deeley, Pennsylvania #ALS #MND #ALSAwareness #OurALSCommunity #PortraitsofALS

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