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Lent 2018 – Day 27

March 12, 2018February 13, 2018 / sunnystrongblog / Leave a comment

Lent 2018

ALS - SunnyStrong, Erasmus, Lent 2018

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← Lent 2018 – Day 26

Reblog: Guest Post: Patient Voices Matter →

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Latest Blog Post

9.13.19 Sunny Loves Tom September 13, 2019

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https://sunnystrong.com/2019/09/13/9-13-19-sunny-loves-tom/ #alssucks #sunnystrong #als #alstexas #lougehrigsdisease #amyotrophiclateralsclerosis #alsawareness #fwtxbloggers #fwtx

thank you @mint.for.me for getting me #monations2019 ready 😍😍 this has quickly become one of my favorite mantras, i repeat it to myself daily 🙌🏼 i believe it was @johncmaxwell that said yesterday, “I’m determined to live my life until I die” #monations

y’all i’m a nervous wreck ☹️ this popped up on my #timehop this morning and is keeping me from drowning - keeping with the swimming analogy 😉 i’ve always loved chaos, large crowds, new adventures, challenges, etc. but right now i’m truly having a hard time getting grounded, my confidence is shaken, and i’m drinking this @starbucks like it’s my only life source 😳😳 it’s going to be fine i’ve always loved to swim #monations2019 here i come 🥴🥴 #monathair #shampoodealer #shopsmallfortworth #tylerknottgregson #nervouswreck #caffineme #earlymorningthoughts #soloflight #alssucks #sunnystrong #coffeeonmyshirt

@rare_advocates continued #rareacrossamerica with a great meeting with @thesquidnie in @sentedcruz office in Dallas #rarediseases #raredisease #rdla #advocacy #alsadvocacy #als #alstexas #alssucks #sunnystrong #alsawareness #lougehrigsdisease #iamals

#Repost @larrychallengeals with @get_repost ・・・ My last game with the @braves at @suntrustpark was absolutely amazing! If you go to a game there on a night with a fan giveaway, meet the man behind the swag. Andra is one of the toughest guys I've ever met. He was diagnosed 10 years ago and still shows up to work at all the Braves home games making sure people get the giveaways, and that kids who run the bases get their tshirts. I asked Andra what gave him hope? "I just believe that I'm going to keep living. I don't give up." Je want on to say that he believes it is his mental attitude that he believes will help him beat ALS.

#Repost @larrychallengeals with @get_repost ・・・ I'm here at @minute_maid_park for game 29, and the @astrosbaseball have taken things up a notch by giving me my own jersey!

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