Past, Present, Future: The Journey to Advance Innovations in ALS Sponsored by The renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.Highlights of the program include:PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be … Continue reading 12.8.20 Big Day! Huge Day!
Married 11/12/16, My husband Kenneth and I are loving this crazy life of ours with our service dog, Baloo, and grumpy cat, Ian.
“No fault, no blame, nobody done no wrong- That's just the way it sometimes goes. Sometimes two people just don't get along, it's time to hit the road. Goodbye, farewell, so long, vaya con dios. Good luck, wish you well, take it slow. Easy come girl, easy go.” George Strait I'm thankful for song lyrics, … Continue reading 6.26.20 Divorced
4.20.20 My Guardian Angel Wears Antiperspirant
I can't help but think that Carole is smiling knowing that we're rolling her book out on 4/20. Book 1 of 5 for our Talk ALS To Me Virtual Book Club for ALS Awareness Month is “My Guardian Angel Wears Antiperspirant” by Carole Breton and Jeanne Bean Murdock. We will meet virtually to discuss this … Continue reading 4.20.20 My Guardian Angel Wears Antiperspirant
4.17.20 ALS Awareness Month Passion Project
We are SO excited to announce our passion project for ALS Awareness Month coming up in May. More info to come. Happy Friday!
ref·uge /ˈrefˌyo͞oj,ˈrefˌyo͞oZH/ noun a condition of being safe or sheltered from pursuit, danger, or trouble. Hico has always been my place of rest, refuge, and relief. From the time we moved here when I was in 3rd grade to now as a semi-adult, Hico has served as my home base asylum from the insanity of … Continue reading 1.18.20 Refuge
1.15.20 Not All Heroes Wear Capes
Steve Gleason. 9 years with ALS, countless lives impacted by his dedication to fighting this disease, legislation changes, technology improvements, awareness, rewriting of the narrative of diagnosis, and the list goes on and on. This disease is devastating, and Steve has been an agent of change in every area impacted by this life interruption. He … Continue reading 1.15.20 Not All Heroes Wear Capes
1.3.20 We’ve Come a Long Ways
Today is our 3 year blog-aversary!! I love seeing who views from around the world. We have some exciting announcements coming up soon! Thanks for continuing to love and support me through this disease.
1.1.20 Decade in Review
2010 Sunnylet’s see... 2010 - I was living in San Marcos with Thomas and Will, and Marg & Cass & I started the Tant Shepherd fan club and followed him around watching baseball, experienced my first and last halloween on 6th Street in Austin, went on Mancation to Ruidoso, and to Florida and knocked out … Continue reading 1.1.20 Decade in Review
12.3.19 Cheaters for Everyone
Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone
12.2.19 It’s Tomorrow Here
My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here