10.30.18 Happy Birthday Paula the Port

One year ago today, Paula the Port joined our team and made Radicava Ridiculousness easier for everyone involved. This is our first every picture together. We've had our ups and downs, multiple hospital visits, and troubles but in the end I'm thankful you're part of this crazy journey.

Reblog: The Art of ALS Adaptability

The Art of ALS Adaptability  OCTOBER 16, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Life with ALS often feels like a crash course in adaptability but being adaptable doesn’t come naturally for many of us. However, whether you’re the patient, caregiver, or a family member, I believe you can learn … Continue reading Reblog: The Art of ALS Adaptability

Reblog: ALS and Faith

Why I’m Taking Exception to Stephen Hawking  OCTOBER 24, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS.   Renowned physicist and author Stephen Hawking, perhaps the most famous ALS sufferer after Lou Gehrig, had his final book posthumously published on Oct. 16. In “Brief Answers to the Big Questions,” … Continue reading Reblog: ALS and Faith

10.24.18 Wed-Nes-YAAAAY

Tuesday was so good I had to raise my personal fundraising goal to $1750 AND WE'RE ALMOST THERE! Please consider making a donation by clicking here. Ok, enough about me. Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. Here … Continue reading 10.24.18 Wed-Nes-YAAAAY

10.19.18 Oh Sweet Jesus, Who Gave That Woman an Amp?

Guess who was asked to speak during the opening ceremony of the walk? ME! We're right at a week out from the Walk - are you ready for this Jelly? Team SunnyStrong is rock'n and roll'n - it's going to be great! I'll send out the agenda next week but plan to be there at … Continue reading 10.19.18 Oh Sweet Jesus, Who Gave That Woman an Amp?