SunnyStrong

No Apologies | No Excuses | No Regrets

Skip to content

SunnyStrong
Life as We Know it
Radicava Ridiculousness
Adventures for SunnyStrong
The List
Chronicles of Phil
Ambien Musings
SunnyStrong Store
Erasmus Family Monat

Search

Search for:

Reblog: The Minutaie

October 29, 2018 / sunnystrongblog

via The Minutaie

Share this:

Share

Twitter
Facebook
Email
Print
LinkedIn
Pinterest

Like this:

Like Loading...

Related

Life as we know it

ALS - SunnyStrong, Awareness, Reading, Walk to Defeat ALS

Post navigation

← Reblog: The Art of ALS Adaptability

10.30.18 Happy Birthday Paula the Port →

Leave a Reply Cancel reply

Enter your comment here...

Fill in your details below or click an icon to log in:

Email (required) (Address never made public)

Name (required)

Website

You are commenting using your WordPress.com account. ( Log Out / Change )

You are commenting using your Google account. ( Log Out / Change )

You are commenting using your Twitter account. ( Log Out / Change )

You are commenting using your Facebook account. ( Log Out / Change )

Connecting to %s

Notify me of new comments via email.

Notify me of new posts via email.

Follow Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 1,864 other followers

Latest Blog Post

ALS Advocates Take Action During Congressional Recess August 21, 2019

Blog Stats

74,279 hits

Instagram

last week I had the opportunity to meet with Kristin Vandergriff in @repkaygranger local office as part of @rare_advocates #rareacrossamerica program. As a #patientadvocate for #als it is amazing to feel heard and supported in any meetings with our legislators offices. #alstexas #sunnystrong #fwtxbloggers #fwtx #mnd #amyotrophiclateralsclerosis #lougehrigsdisease #endals

After lots of people dumped ice on their heads did you ever find yourself wondering, what the heck is ALS? We did. And so did most Americans. So we set out to answer this question in less than 60 seconds. Watch. Share. Help kick some #als.

‪“One of the hardest things about caring for someone with ALS is adapting to continual change.”‬ https://alsnewstoday.com/2019/08/15/learning-new-skills-didnt-need-feeding-tube/ #als #mnd #lougehrigsdisease #amyotrophiclateralsclerosis #alssucks #sunnystrong

“I’m familiar with the concept of food banks, blood banks, and eye banks. But a voice bank? Would they store my voice and put it back inside me later?” https://alsnewstoday.com/2019/08/20/voice-banking-dysarthria/ #als #mnd #lougehrigsdisease #amyotrophiclateralsclerosis #alssucks #sunnystrong

“Suddenly, inspiration jumped out from an Elvis Presley hit. I realized that my ALS saga could mostly be retold by borrowing from song lyrics.” https://alsnewstoday.com/2019/08/21/song-lyrics-musical-als-saga/ #als #mnd #lougehrigsdisease #amyotrophiclateralsclerosis #alssucks #sunnystrong

five years ago, i was just a single girl participating in a social media campaign because all of my friends were doing it. oh how life has changed in 5 years, specifically an ALS diagnosis just months after this video was made. did you participate in the #alsicebucketchallenge ? share your video and tag us! because this august, and every august until there’s a cure! www.sunnystrong.com #als #alstexas #alssucks #sunnystrong #amyotrophiclateralsclerosis #mnd #lougehrigsdisease #icebucketchallenge #fwtxbloggers #fwtx #endals #kickals #iamals

Twitter #endALS

SunnyStrong

SunnyStrong

Search for:

Archives

Archives

Blogs I Follow

#SarahsSoldiers
CAPTIVATING!
Stand Up 2 ALS

Search for:

Archive

Archive

Blog at WordPress.com.

#SarahsSoldiers

The power and possibilities of inclusion are limitless

Living with ALS

Send to Email Address Your Name Your Email Address

Cancel

Post was not sent - check your email addresses!

Email check failed, please try again

Sorry, your blog cannot share posts by email.

%d bloggers like this: