11.13.18 Bullsh*t

I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t

11.12.18 XI.XII.XVI

"I just want to life with you." - J. Iron Word life • /līf/ • verb For two years we've been trying to succeed at this thing called life. Together we are better, faster, stronger. Separately we are inadequate, unfinished, and lost. We celebrate our successes and mourn our losses together. "You win sometimes you … Continue reading 11.12.18 XI.XII.XVI

11.8.18 November 3, 2017

November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017

11.7.18 Portraits of ALS

In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS

11.6.18 Who’s the Boss? Kelly’s the Boss!

Y'all know my Aunt Kelly. She's taken #BossBabe to a whole new level with this awesome article in D CEO Magazine. Lunch With: Ricochet Fuel Distributors Inc. Founder Kelly Brett Roberts Roberts started her own fuel transportation company 30 years ago, because she knew she could do it better than her boss. BY BRANDON CALL  PUBLISHED … Continue reading 11.6.18 Who’s the Boss? Kelly’s the Boss!

11.5.18 FW Walk Recap

Team SunnyStrong was powerful. This is most, had some come late and there in spirit but this was as good as group pics go. We took advantage of the stage, mainly since I was already on it. We raised $3955 and still going. I'm only $50 from my goal, so if you feel so inclined … Continue reading 11.5.18 FW Walk Recap

Reblog: From the ALS Underground: The Last (Plastic) Straw

From the ALS Underground: The Last (Plastic) Straw  OCTOBER 30, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Have you heard the news? They’re banning plastic straws. Oh, darn! Just when I thought I had my ALS symptoms all figured out, perfect solutions in place, and solid daily routines to follow, a new curveball … Continue reading Reblog: From the ALS Underground: The Last (Plastic) Straw

Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association

https://www.youtube.com/embed/RWi0ZoW-ePw?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent By Stacy Crowder There’s no sugarcoating it. ALS is terrible. Unlike many fathers this Halloween, I couldn’t carve a pumpkin with my kids. I also couldn’t help them put on their costumes or take them trick-or-treating. I didn’t know much about ALS before my diagnosis, but I became an expert pretty quick. I also … Continue reading Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association

11.1.18 I Wonder If They’ll Have Dr. Pepper

This dynamic duo is attacking ALS in a whole new way AND in a whole new country: SCOTLAND Carlie and I are so excited we can't hardly stand it. I applied and was accepted as one of three Patient Fellows for the International Symposium on ALS/MND Research in Glasgow this December 7-9. This is the … Continue reading 11.1.18 I Wonder If They’ll Have Dr. Pepper