6.12.18 We Can Dance if We Want To

Two weekends. Two bachelorette parties. Two groups of dancing queens. If you know absolutely nothing about my girls, know this: We celebrate everything, to the fullest most over the top extent We are always dancing Need to learn how to floss? We got you 😉 Need fun theme ideas? We got you! Need good looking … Continue reading 6.12.18 We Can Dance if We Want To

6.11.18 You’re Invited

Smokin’ for Sunny: BBQ, Corn Hole Tournament, & Good Family Fun On Saturday, June 30th Po Campo BBQ along with Sherry Schane and Cindy Sims will be hosting a day for our favorite person, Sunny (Brous) Erasmus. Corn hole tournament will start at 8AM followed by good family fun- live music, bounce house, and delicious … Continue reading 6.11.18 You’re Invited

6.8.18 Um, it’s Friday?

busy, busy week and just realized we haven't chatted this week - sorry! I know, I miss you too! Here's a silly Ian video to hold you over. We'll be in touch very, very soon! Have a wonderful weekend!

Reblog: From Balloons to Bubbles

Reblogged from ALS News Today From Balloons to Bubbles: How I Breathe Well with ALS MAY 29, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I know I have no control over how quickly or slowly my ALS progresses, but I can try to hold off the negative effects that … Continue reading Reblog: From Balloons to Bubbles

Reblog: Oral Edavarone

I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone

Reblog: Right to Try Law

Reblogged from ALS News Today US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases JUNE 4, 2018  BY LARRY LUXNER IN NEWS. As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn of Indianapolis tried twice to embrace … Continue reading Reblog: Right to Try Law

6.1.18 Saturday the 19th

This should the last catch up post, I told you that week was crazy. So Carlie and I returned from DC on Wednesday and I spent all of Thursday in my jammies relaxing. Hiding out at my mama's house in Hico is good for rest and relaxation. Friday was prep day for the 15th Annual … Continue reading 6.1.18 Saturday the 19th